ahimsa
ahimsa_pdx on twitter
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I have a meeting with a doctor who is a sleep specialist (neurologist, I think). Depending on the how this meeting goes I might be scheduled for a sleep study. (actually, I'm not sure I want a sleep study, but if it will help figure out what's going on then I'll do it...) Any suggestions from folks who have met with a sleep specialist?
One thing that I wonder - is it likely for a sleep doctor to understand the issues of patients who have orthostatic intolerance? I have had two abnormal tilt table tests - diagnosed with Neurally Mediated Hypotension. I have no idea exactly how (or even whether) these issues contribute to my sleep problems. I think there's some relationship just from casual observation over the last few years but it could be unrelated.
I'm not sure exactly how to approach this issue with this doctor. On the one hand I want to provide all the information that might help figure out my problems. But I don't want to alienate a doctor that I've never met. I'm sure you folks know what I'm talking out. There are too many doctors out there who are all too ready to dismiss any input from patients, especially from ME/CFS patients, unless it is framed in a way that the doctor is able to accept it.
I know I'll have to play it by ear (20 years of dealing with doctors has taught me that) but I'm looking for any input that might be helpful. Thanks!
One thing that I wonder - is it likely for a sleep doctor to understand the issues of patients who have orthostatic intolerance? I have had two abnormal tilt table tests - diagnosed with Neurally Mediated Hypotension. I have no idea exactly how (or even whether) these issues contribute to my sleep problems. I think there's some relationship just from casual observation over the last few years but it could be unrelated.
I'm not sure exactly how to approach this issue with this doctor. On the one hand I want to provide all the information that might help figure out my problems. But I don't want to alienate a doctor that I've never met. I'm sure you folks know what I'm talking out. There are too many doctors out there who are all too ready to dismiss any input from patients, especially from ME/CFS patients, unless it is framed in a way that the doctor is able to accept it.
I know I'll have to play it by ear (20 years of dealing with doctors has taught me that) but I'm looking for any input that might be helpful. Thanks!