Any antimicrobial can kill good bacteria, but I'm not convinced they're all bad or thay natural ones are always better.
Probably. But given how sick I am that in my doctors hands and none have spearheaded me getting it. I had a good immune response to pneumovax which apparently disqualifies me for ivig
I agree, I take mcas meds for one, and I take treatments that are palliative in tbi/excitotoxicity, to help w my cci while waiting for surgery. I think these tests are probably tip of the iceberg tho , my hope was that a doctor will look at them as evidence to order more comprehensive tests. Ultimately since there are a few positive inflammatory markers I think its evidence that supports trying to test for a broad range of ones that may affect my connective tissue , which is degenerating.
That's a shame. It looks good on paper, almost panacea, but I wonder if it has narrow range of application.
Your SFN is a clue. Pain can be caused by nervous system dysfunction. Perhaps IVIG would help. Or things that calm the nervous system.
We are on the edge of science. Passively waiting for one's doctor to help while wringing ones hands is not a recipe for success. Doing ones research, arming oneself with facts, then advocating for oneself with one's doctor, or a different doctor if the first one won't help gives one better odds of success...
I'm not sure doxycycline is necessary. You might try omegas 3s if SPM by Metagenicsc or Designs for Health:
I respect you immensely, but this is not a matter of choice. Pacing is an absolute necessity in severe illness and I have gone above and beyond my limits in the past with how much time and energy I've put into it. I don't want a doctor to do everything for me. But I know many people who have an me/cfs doc that is way more of an advocate for them and way more active in their care than mine whi answers every third email. My obsessive and intense research and having yo do everything myself has cost me precious energy in the past. I don't think its unreasonable to reach out for help or need it. we are interconnected beings. And PEM sets hard limits. In the recent past I extended my energy envelope so much with certain treatments like mold avoidance that I didn't have to worry about pacing as much. But now I do. It's all I have until I find treatments that extend that envelope.
I work as hard at this as I can. But I have severe PEM , it's not sustainable to do by myself. At all. Writing these paragraphs took a whole days worth of energy, I will have to rest for about 8 hours now
Wow!!! Imidazenil is especially a dream I want it to end my benzo dependence.
Will do
Not the exact combo but certainly the bcaas and glutathione separately. The bcaas worked when I was less ill.
