Medication overuse headache syndrome anyone?

heapsreal

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Drs suggested to cut back and every so often have a day medication free. MOHS i guess he was hinting at. Not fully convinced yet. My pain killer use has increased since post shingles pain has increased over last 12 months.

Very little ibuprofen or paracetamol as i dont find them helpful. I am on tramadol 50mg every morning for lower back arthritis. Lyrica at night as a preventer and for RLS and on occassions take extra for headaches. My dr prescribed palexia for headaches which by the end of most days my head is throbbing. Palexia 4 days per week.

I stopped tramadol 4 days ago and palexia none today but took some asprin/lyrica. Headaches start of mild and increase to moderate. Today throughout the day id have mod to severe headaches for 30min than ease abit back and forth. This afternoon when i got home my headache was mild which is an improvement.

One preventative treatment i started 5 days ago that scares me abit was low dose effexor 37.5mg. By second day to my suprise my lower back pain was ok without tramadol and continuess to do so. Not doing much for headaches but early days. TCA antidepressants did little.

Interested to hear other peoples experiences on it.
Cheers
 

BrightCandle

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Doctors are idiots. At the very beginning of my disease I was having occasional headaches and using paracetamol and as it got worse I was using more and more until it become most days. Got told it was overuse and had to stop for 2 weeks and at the end of those two weeks my headache was a 9/10 and I was partially blind, for 6 months. Did they help me? No they did not, not at all.

Could you have overuse headaches? Yep you could it does appear to be a real thing, get off the drugs and endure for a week and see if it dissipates but if just gets worse change doctor and don't look back because that one is a bad un.
 
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heapsreal

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Doctors are idiots. At the very beginning of my disease I was having occasional headaches and using paracetamol and as it got worse I was using more and more until it become most days. Got told it was overuse and had to stop for 2 weeks and at the end of those two weeks my headache was a 9/10 and I was partially blind, for 6 months. Did they help me? No they did not, not at all.

Could you have overuse headaches? Yep you could it does appear to be a real thing, get off the drugs and endure for a week and see if it dissipates but if just gets worse change doctor and don't look back because that one is a bad un.
It seems to be an easy out for drs to say its overuse. I will keep trying for a few more days reduced meds
 

heapsreal

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Doctors are idiots. At the very beginning of my disease I was having occasional headaches and using paracetamol and as it got worse I was using more and more until it become most days. Got told it was overuse and had to stop for 2 weeks and at the end of those two weeks my headache was a 9/10 and I was partially blind, for 6 months. Did they help me? No they did not, not at all.

Could you have overuse headaches? Yep you could it does appear to be a real thing, get off the drugs and endure for a week and see if it dissipates but if just gets worse change doctor and don't look back because that one is a bad un.
Saw a study done by the Dutch on migraine and every day headache sufferers. Suppose to go 2 months med free. There was a percentage thatcouldnt last that long but those that lasted 2 months 47%improved about the same didnt and 6% got worse.

My dr is ok, he said just try a day here and there and see how i go. The neurologist i saw who was a cow pushed this and migraine diagnosis before i even said anything, that saw a few months back. Im just feeling it out as an option as things werent getting better.

The 'migraine' thing is confusing as many information sites say hit it hard and quick and use combos of things. The med overuse thing doesnt come up unless one specifically searchers for it. Supposedly simple analgesics do this also and i know of many people who take them very regularly but never heard of anyone with this issue.

I guess theres a big push world wide it seems to reduce many types of pain relief. This med overuse thing looks to help them push this. Not helpful if one is in bad pain and doesnt have overuse issues. Another reason to hate dealing with the health system.
 

BrightCandle

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All the war on oppoids has done is make a lot of people suffer with severe pain and struggle to cope with day to day life. It hasn't done anything useful for reducing addiction or the impact of these drugs, its just introduced a lot of human suffering. Chronic pain doesn't go away on its own, it can't be yogaed or meditated away nor can it just be distracted from, it can however be managed with appropriate treatment.

The studies showing that pain meds don't work on chronic pain come the same damn place with the same "quality" as those advocating GET for ME patients. You don't have to spend long with chronic pain sufferers to learn that these studies results don't work.
 

heapsreal

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Update. I stopped tramadol, which i use for back pain, for a week. Im sure it was tramadol withdrawal as whole head felt weird, similar to stopping antidepressants. I was still getting intermittent headaches.

So after a week off tramadol and less use of palexia, i woke up and the weird withdrawal symptoms gone and general headaches. But im still getting left side neuralgia/phn/shingles pain localized to left side of head is still present.

Low dose effexor still helping lower back pain, so thats a win and dont need tramadol i guess unless my back flaresup. I cant say its helped the shingles headaches much, maybe too early but willing to try one more dose escalation of effexor from 37.5 to 75mg. I have a few more weeks until i see my dr, so will plod along and see what happens until then. The other options i last spoke with my dr was changing my preventer lyrica and try Gabapentin or topamax???

If i had medication overuse headaches, possibly🤔 but the initial reason for pain relief was the shingles headaches and its still present.