Medical Literature/Resources

[Swim15]

I know this forum is awash with amazing information and I’ve read much of it.

My doc, however, is dragging feet and I’m trying to convince him to start me on some aggressive antiviral therapies here in the next month or so.

I’ve compiled a document for him with literature on...
• The use of antivirals (specifically Valcyte and remover) for CFS
• Oxymatrine/inosine for enterovirus CFS
• Prominent doctors that treat CFS and their treatment protocols


I know a lot of this info is on this forum but I wanted to see if anyone had links to literature and treatment protocols from more “legitimate” medical sources so I can skip the time arguing over legitimacy.

Mainly looking for the most concise literature I can find on the above compounds, the viral component of CFS, and treatment protocols from specialists that have both worked well and not worked well hisorically so I can cite some examples of less efficacious treatments.

@Hip I was going to PM you for this but figured other people may benefit.

I’ve looked a lot on google and going to continue doing so but know a lot of you have some great resources saved.

 

[Pyrrhus]

Phoenix Rising has some research resources, but they look to be quite out of date.
https://phoenixrising.me/research-2

Hope this helps.

 

[Hip]

Mainly looking for the most concise literature I can find on the above compounds, the viral component of CFS, and treatment protocols from specialists that have both worked well and not worked well hisorically so I can cite some examples of less efficacious treatments.

For oxymatrine, Dr Chia could not get funding for a study, so there's nothing published, but he did his own quasi-study, which is detailed in this post.

For Valcyte, the only published studies were by Dr Lerner and Prof Montoya, detailed in this post.

ME/CFS doctors' treatment protocols detailed here.


MEpedia is also a very useful resource for getting references. For example, just Google MEpedia Valcyte.

 

[Swim15]

For oxymatrine, Dr Chia could not get funding for a study, so there's nothing published, but he did his own quasi-study, which is detailed in this post.

For Valcyte, the only published studies were by Dr Lerner and Prof Montoya, detailed in this post.

ME/CFS doctors' treatment protocols detailed here.


MEpedia is also a very useful resource for getting references. For example, just Google MEpedia Valcyte.

Thanks Hip - appreciate you. I think I’ve saved some of those but I’m gonna go back through and look.

Normally have more time to research but have been forced to attempt working more lately and it’s just been hitting me hard. Do not want to start over with another doc so hoping this guy can pull through for me

 

[YippeeKi YOW !!]

Am tagging @PatJ in, who has a enormous and well-organized, easy to browse list of links to resources for everything ME, including articles that may help sway your Dr ....

 

[PatJ]

I don't remember if there's anything specific to antivirals in these resources, but you might find something useful:

ME Action 2019 Research Summary
https://www.meaction.net/2019/06/12/meaction-releases-an-updated-me-research-summary/

ME/CFS Resources and Support for the COVID-19 Long Haulers - A detailed guide from Health Rising about symptoms and their management for people who had COVID-19 but are now having long-term problems. It's also useful for anyone who has ME/CFS.

6 page handout on the basics of ME/CFS diagnosis and management by the U.S. ME/CFS Clinician Coalition. This short overview can be useful if you have a doctor who is willing to read it.

Erica Verrillo's CFS Treatment Guide 2e - An older but still excellent, very detailed guide published in 2012.

ME/CFS: A Primer for Clinical Practitioners - 2014 Edition (2.5 MB PDF)