Alan Cook, Chair of Board of Trustees, Action for M.E., says, “As a point of principle, Action for M.E. supports the sharing of research data to enable replication and validation. We have
supported the release of PACE trial data, and
I wrote to QMUL in February to ask it to do so. It is evident that this new preliminary analysis of the data raises a number of questions, and we would welcome publication in a peer-reviewed journal to facilitate the robust scientific debate that is clearly needed.
“Any new evidence that can be replicated and validated concerning the efficacy of symptom-management approaches must be considered in the formulation of treatment guidelines. This includes the guideline published by the National Institute of Health and Care Excellence, which is due to be considered for review next year.”