The CDC’s program specialist for ICD-10 Coordination and Maintenance Committee would not defer the Nov 13, 2018 due date for comments on the proposal to move CFS to the same umbrella heading as ME and the addition of a new code for SEID under the same heading as well - Other disorders of the brain.
In an effort to protect patients with ME from being harmed by improper classification, MEadvocacy Advisory Committee has submitted a comment opposing this change. We urge all patients and advocates to email C&M Committee to voice the concern that ME patients are not well served by this change.
As previously reported in our blog
SEID Classification Usurping ME Must be Stopped, the CDC/NCHS has proposed changing the US International Classification Disease (ICD-10-CM) codes for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) and adding a new code for systemic exertion intolerance disease (SEID).
MEadvocacy Advisory Committee contacted the office responsible for handling this proposal requesting a deferral. This was reported in our blog
Deferral Needed for Proper ICD Proposal Evaluation
