My daughter was diagnosed with ME/CFS as a teenager. She spent several years mostly bedbound (dark room, headphones, etc) doing virtual school to the extent possible. She is now a young adult. She figured out how to have a job and go part time to college remote - has lived with it for many years and is accustomed to it to the extent possible.
This year, though, she got a 'mild' case of Covid-19 which lasted 1-2 weeks. Ran a fever, had flu-like symptoms, lost smell for a few days and then got it back. Then, basically recovered. A few weeks later she got a UTI. And, then again a few weeks later. By now, she'd had 7 or 8 UTI's. She also has frequent bouts of nausea and intestinal issues, as well as the usual exaggerated ME/CFS symptoms. And, ad hoc histamine responses. She's sitting at her desk and suddenly there's a rashy bright red spot on her face and in a few hours (or with cortisone) it goes away.
We suspect the nausea is a combination of stomach damage done from antibiotics for the UTI's and also tummy viruses circulating in women in the office who have school age kids. She's using a peppermint based product and ginger.
After a few UTI's we researched and discovered recurring UTI's and other intestinal issues are Long Covid symptoms. Covid-19 also causes immune deficiency, making her more likely to be unable to fight off UTI's and also other tummy viruses. So - now she has Long Covid on top of ME/CFS - which is ironic, as some suggest they may be essentially the same thing but clearly something has changed, so perhaps this is now a worsened form of ME/CFS.
I was trying to figure out which thread to post to on Phoenix Rising.but wasn't sure where is the thread for 'I had ME/CFS and then got COVID and then got Long Covid'. I don't see Long Covid under 'comorbid diseases'.
Has anyone here experienced something like this? Do you have ideas about how to tackle the recurring UTI's (infection confirmed, not just OAB) and tummy issues, or how to tackle the Covid-caused immunodeficiency part of this situation. We have IV clinics in the area. Do you think a Myers Cocktail IV would help? I read differing opinions on whether it's efficacious.
Thanks for any insights you may have, if this is the wrong thread, please direct me to the right place. It has been years since I posted here so I'm a bit rusty. Thanks!!
This year, though, she got a 'mild' case of Covid-19 which lasted 1-2 weeks. Ran a fever, had flu-like symptoms, lost smell for a few days and then got it back. Then, basically recovered. A few weeks later she got a UTI. And, then again a few weeks later. By now, she'd had 7 or 8 UTI's. She also has frequent bouts of nausea and intestinal issues, as well as the usual exaggerated ME/CFS symptoms. And, ad hoc histamine responses. She's sitting at her desk and suddenly there's a rashy bright red spot on her face and in a few hours (or with cortisone) it goes away.
We suspect the nausea is a combination of stomach damage done from antibiotics for the UTI's and also tummy viruses circulating in women in the office who have school age kids. She's using a peppermint based product and ginger.
After a few UTI's we researched and discovered recurring UTI's and other intestinal issues are Long Covid symptoms. Covid-19 also causes immune deficiency, making her more likely to be unable to fight off UTI's and also other tummy viruses. So - now she has Long Covid on top of ME/CFS - which is ironic, as some suggest they may be essentially the same thing but clearly something has changed, so perhaps this is now a worsened form of ME/CFS.
I was trying to figure out which thread to post to on Phoenix Rising.but wasn't sure where is the thread for 'I had ME/CFS and then got COVID and then got Long Covid'. I don't see Long Covid under 'comorbid diseases'.
Has anyone here experienced something like this? Do you have ideas about how to tackle the recurring UTI's (infection confirmed, not just OAB) and tummy issues, or how to tackle the Covid-caused immunodeficiency part of this situation. We have IV clinics in the area. Do you think a Myers Cocktail IV would help? I read differing opinions on whether it's efficacious.
Thanks for any insights you may have, if this is the wrong thread, please direct me to the right place. It has been years since I posted here so I'm a bit rusty. Thanks!!
