I'll second the advice to head to see Dr. Klimas. Unfortunately, no one in Boston comes close at this point.
Also, dsdmom, agreed on Dr. Freeman. He is not able to help with CFS more broadly. Depending on where you are in the diagnostic process, he can play a role. He was important for me in that it was the first black on white diagnosis I got, and he was able to give me a good picture of what was going on with my autonomic system (pots, peripheral deenervation).
But if you have to chose because of costs, insurace etc., he probably would not be my first stop. Also, he tends to reccomend Florinef, which is an immunosuppressant, so probably a really bad idea if there are viral factors at play. I know I felt terribly on it and better once I got off it.