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Hello community,
just an update - I am now on full remission from ME/CFS by doing strict mold avoidance. I can exercise til I pass out and will not get any PEM. Zero. This is in stark contrast to late 2020 where even a shower had the potential to destroy me.
I am not healthy by any means, as I am plagued by Lyme and Co and some other residual mold symptoms. And mild CCI. But my quality life is incomparable.
This leads me to two *anecdotal* conclusions:
1. CCI is not the only trigger for PEM. Clearly, it’s possible to have CCI, do mold avoidance, and remit from any PEM. Not that I’m specifically endorsing it, but Cleary it’s possible.
2. Biotoxins are a big factor for a non inconsequential subset of the ME population. I would not say mold is the *cause* of ME, but there is undeniably a relationship there that needs further research.
have no incentive here to promote woohoo therapies, just want to provide some hope that remission is possible. This lifestyle is hard, lonely, and quite frankly maddening at times. But the ability to exercise once more makes it all worth it.
just an update - I am now on full remission from ME/CFS by doing strict mold avoidance. I can exercise til I pass out and will not get any PEM. Zero. This is in stark contrast to late 2020 where even a shower had the potential to destroy me.
I am not healthy by any means, as I am plagued by Lyme and Co and some other residual mold symptoms. And mild CCI. But my quality life is incomparable.
This leads me to two *anecdotal* conclusions:
1. CCI is not the only trigger for PEM. Clearly, it’s possible to have CCI, do mold avoidance, and remit from any PEM. Not that I’m specifically endorsing it, but Cleary it’s possible.
2. Biotoxins are a big factor for a non inconsequential subset of the ME population. I would not say mold is the *cause* of ME, but there is undeniably a relationship there that needs further research.
have no incentive here to promote woohoo therapies, just want to provide some hope that remission is possible. This lifestyle is hard, lonely, and quite frankly maddening at times. But the ability to exercise once more makes it all worth it.