ME/CFS Documentary

[ixchelkali]

Reply to Susan

Thanks for posting the link to that film. While I can see the problem the others pointed out about the people looking too healthy, I still thought it was very good. And one of the problem we all have is that we look too normal when people see us, so they were representing the view that most people get of PWCs. I wish some channel (like the Health Channel?) would should that film here. And I want Dr. Roz Vallings for my doc!

 

[cold_taste_of_tears]

Yup it seems we have a Candida causes ME theory in our midst.

Problem is that theory went out with the ark, and now XMRV has blown our socks off and given us all a breath of fresh air.

So maybe we put this 'fungus' idea to bed, huh?



Otherwise we'll end up unwittingly contributing to a documentary on ME - that makes fools of us on national TV.

Ohh Wait......

 

[Marylib]

Lucky in NZ

Thanks for posting the link to that film. While I can see the problem the others pointed out about the people looking too healthy, I still thought it was very good. And one of the problem we all have is that we look too normal when people see us, so they were representing the view that most people get of PWCs. I wish some channel (like the Health Channel?) would should that film here. And I want Dr. Roz Vallings for my doc!

Oh, yes, we are very very fortunate to have Ros Vallings for our specialist. Not only does she treat lots and lots of people, she does her best to educate lots and lots of NZ doctors. And that is only the half of it!

 

[Marylib]

Candida? Again? Oh dear....

 

[Dx Revision Watch]

Example entry from National Archives site

An MP has already submitted a request for information under FOI and a Review was set in motion by someone else (not me) yesterday.

I would consider it counterproductive for others to pile in with requests at this stage.

In the meantime, we can amuse ourselves opening up all the links on all three pages and their subpages. I started copying these (they could be saved as web pages), but I ran out of time that day...


http://www.nationalarchives.gov.uk/...75665&CATLN=7&Highlight=&FullDetails=True&j=1


Closed For 73 years

This document was closed under the Public Records Act or is exempt under the Freedom of Information Act 2000. It is possible to request a review of the information it contains under the Freedom of Information Act 2000 and this will trigger a review. Request review.

Record opening date 01 Jan 2071

Closure status Closed Or Retained Document, Open Description
Further information about access conditions is available

[Link opens sub page]

Freedom of Information Act Exemption Information
Access Status for Item FD 23/4553/1


40 pages
FOI decision date 2008

Exemption 1 Personal information where the applicant is a 3rd party
Explanation These extracts contain information supplied in confidence by named individuals to the Medical Research Council in relation to applications for research grants and confidential discussions on the selection of candidates. It also contains medical information on named members of the public. The youngest person was aged at least 27 by 1997. The entire piece was previously closed for 50 years.

Exemption 2 Information provided in confidence
Explanation These extracts contain information supplied in confidence by named individuals to the Medical Research Council in relation to applications for research grants and confidential discussions on the selection of candidates. It also contains medical information on named members of the public. The youngest person was aged at least 27 by 1997. The entire piece was previously closed for 50 years.

 

[RJJ]

ME Documentary

Hi All,

Thanks everyone for your response and help. The film I want to make doesn't just look at the effect the condition has on suffers; I'm looking to take it a stage further by exploring what efforts the government have made towards discovering the cause of the condition. We all know that there seems to be some kind of hidden scandal going on and I think I'm in a good position, having worked in TV for ten years, to expose them by making a film which will reveal 'the cruel extent of the crimes committed against people suffering with ME/CFS'.

I had ME for six years and like so many, I was placed in a mental health clinic where I was checked upon every 30 minutes to make sure I hadn't committed suicide. It was drilled into my head that my condition was psychological. About one year ago, I heard about a girl who made a full recovery from treating an overgrowth of Candida (Candidiasis). Her recovery was so quick that her mum became trained in treating Candida. And over the following years her mother, Sandra, successfully helped a large number of others recover from ME; I soon became one of them. Speaking to Sandra, she has a 100% success rate for helping people recover from ME by treating the Candida. I was curious to know why Candida overgrowth (Candidiasis) isn't recognized by the government. Is it a coincidence that both ME and Candida are having a hard time getting recognition? For more info on Candida please see The National Candida's website.

I understand that many have tried the Candida route and it hasn't worked for them. This may be because it isn't the Candida which is the cause of their ME or it maybe that the treatment they received was somewhat different. There are many steps after getting rid of the Candida such as healing the gut wall from leaky gut syndrome and getting rid of all the parasites and viruses that the body cumulates over many years. I'm not saying Candida is the cause of ME. I'm saying it was the cause of my ME and many others. Anyway, my film isn't about Candida... it's about everything surrounding ME; If Candida has been the cause of many peoples ME then we will report on it and the same applies to other treatments that have claimed to work for other people. I'm working hard in my spare time to create a film for the sole purpose of helping others. I'm well, so it doesn't affect me! If I can help just one person on the road to recovery then I will be pleased. But I want to make a great film that will help portray just how shocking ME is and dealt with -- with the hope that things change for everyone the better.

I am not a journalist. I use to work at ITV as what's called a Shooting Producer/Director but only for light entertainment series. I'm now mainly working as a Lighting Cameraman only, for series such as Panorama. I (or we) are very lucky because there is a very experienced senior producer who worked for many years on ITV's 'Tonight' (currently at C4 news) who likes the idea of this film and is willing to help pitch and, if successful, produce/direct this film. When we have everything together we will be pitching to the likes of Channel 4 current-affairs documentaries. Fingers crossed. I am going to need as much help as I can from everyone with building some solid facts about ME which may help persuade a commissioning editor to commission this film. The info can be as shocking as you like. These are truly exciting times as I'm sure things are about to change for the better.
Im sorry of I dont reply straight away as I have a lot on at the moment with working abroad etc. But I thank you once again for all of your help.

Richard Jeffs