Cinders66
Senior Member
- Messages
- 494
Personally I woukd have liked criticism of LP to be put in the context of a Systemic exertion intolerance disease framework with it being understood and proven that exertion exacerbates symptoms and is its hallmark. Therefore any process that claims to be able to over ride symptoms with the mind and discourages pacing etc as being negative as I've seen reported, is a risk. Even on YouTube I saw patients feeling better on day one and thinking it good to go out and do things they've not done in ages, on top of a Tiring course. They claimed day 4 to still be better but How many of us have had periods of that in our illness where we didn't pace feeling better and do more then get the crash. You can get artificial highs sometimes if you push but then you can crash. I respect that the trial included long-term follow ups not short- term boosts only but it's a risky area and I bet many families will leap on this, possibly without due caution. In uk media, especially with the CFS name, still not enough about PEM is getting out there so people think it's not harmful to push the fatigue.