slysaint
Senior Member
- Messages
- 2,125
an oxymoron? (so proud of learning that word!)I just love the thought of ME activists.
An active day for me is being wheeled around a shop
an oxymoron? (so proud of learning that word!)I just love the thought of ME activists.
An active day for me is being wheeled around a shop
How can she not know why patient groups and patients get angry with her ridiculous research?
you have to ask why does this person keep getting featured in prominent TV and newspaper slots about the subject,
what has she done to be considered the 'foremost expert' and why its always just her or simon wessely ? as charles said he was contacted but then 'something' made them drop it. ?
I wonder if it can be used as a basis to kick her out of the CMRC.
YEP , YEP and thrice 'YEP'."and am very annoyed"
But is in the tent with her!!!! Against the wishes of most people.
Please- we were not born yesterday.
https://forums.phoenixrising.me/index.php?search/44056854/&q=cmrc&o=date&c[node]=14
Just because we are a member of the Board of the CMRC does not mean that we are unable to criticise or complain about research that has been carried out by another member of the CMRC Board when necessary
What IS the point in the CMRC anyway? It's Holgate's / PDW's / Crawley's baby which yes, should have been strangled at birth. There is no bar to 'collaboration' at all. It's already happening with yearly get-togethers at the Invest in ME Conference... but it's done without silly rules and regulations and BPS Chairs. Just get rid of the whole damn shameful thing and kick the BPS influence into touch.
Yes but the MEA and Charles Shepherd are jealous of Invest in ME and that is why they want to get into the tent with Esther Crawley and undermine IIME.
I am more annoyed with the MEA and Charles Shepherd than Esther Crawley.
Agree with your post except this bit. It would be exceptionally unfair to corral them in the same tent wouldn't it? Enough about tents!
Thanks for the transcript!
I heard this live at 7.50am and am very annoyed by this totally inaccurate comment about the MEA and it's position on research into childhood ME/CFS (which we fully support - providing it is ethical and does not involve pseudoscience) to put it mildly!
Incidentally, we were approached last night by the overnight team on the BBC R4 Today programme to do an interview - but for reasons which have not been explained this was not then followed up……
CS
She does know. She doesn't give a sh*t. She does compute ... but running very different software to normal people.Just listened, either she is really thick or an evil genius.
She just makes sh*t up as she goes along.
How can she not know why patient groups and patients get angry with her ridiculous research? When she answered her own flipping question when she said "People are desperate for better research".
And she clearly said the MEA are against research on children.
Does not compute.
Head explodes, bang splatter and so on.
I think the day will come when it actually stigmatises her.I think Crawley is pretty much into hate speech against people with ME in the way she keeps on about threats and aggressive behaviour - it stigmatizes everyone with ME.
Which of course is the classic pot calling the kettle black behaviour of her sort of person.If I was a parent of a child with ME and I heard that and didn't know the truth about this trial, the strong message I would get would be that the MEA are dangerous and dodgy.
How about Dr. + Crawley.an oxymoron? (so proud of learning that word!)
It's the SMC, and we know whose whats they can't stop licking.you have to ask why does this person keep getting featured in prominent TV and newspaper slots about the subject,
what has she done to be considered the 'foremost expert' and why its always just her or simon wessely ?
A point of getting her out would be ... to see the look on her face.What IS the point in the CMRC anyway? It's Holgate's / PDW's / Crawley's baby which yes, should have been strangled at birth. There is no bar to 'collaboration' at all. It's already happening with yearly get-togethers at the Invest in ME Conference... but it's done without silly rules and regulations and BPS Chairs. Just get rid of the whole damn shameful thing and kick the BPS influence into touch.
A point of getting her out would be ... to see the look on her face.