ME/CFS article today on Twitter

[ruben]

Interesting piece today on Twitter about "life threatening" severe malnutrition in badly affected ME/CFS sufferers. Haven't had a chance to fully read it just yet but hardly surprising.

 

[BrightCandle]

Have you got a link to the piece?

 

[ruben]

If you type in on Twitter search "life threatening severe malnutrition in ME/CFS" it will come up.

 

[Judee]

Here's a non-twitter article: https://www.mdpi.com/2227-9032/9/4/459/htm

Not sure if it is the same.

 

[Pyrrhus]

Here's a non-twitter article: https://www.mdpi.com/2227-9032/9/4/459/htm

Not sure if it is the same.

That sounds important enough to warrant its own thread:
https://forums.phoenixrising.me/thr...re-me-cfs-baxter-speight-and-weir-2021.83569/

 

[gbells]

Here's the twitter post.

https://twitter.com/i/web/status/1382220437946523648

Article link. https://www.mdpi.com/2227-9032/9/4/459/htm

Goss malpractice and it basically looks like the NIH doctors were trying to kill the child to save money rather than give her the intensive prolonged care she needed. A two year old child with ME was having dysphagia and malnourished so they diagnosed her as having a psychological problem and treated for an eating disorder.

NGT feeding was instigated following the intervention of a psychiatrist who stated that her nutritional difficulties were not psychological in origin. A SALT assessment confirmed the swallowing reflex was absent. Despite the diagnosis of dysphagia, a second psychiatrist told her that her inability to swallow was psychological. Three months later, with little weight gain, her discharge home was planned without an NGT. With family pressure she was finally sent home with an NGT in place.

 

[Judee]

A two year old child with ME was having dysphagia and malnourished so they diagnosed her as having a psychological problem and treated for an eating disorder.

A two year old child!!??

I'm sorry but her doctors are the ones with the psychological problems.

 

[gbells]

Another day in the life of UK ME patients under the NHS.