Ranting abit, but I think there's alot of things they have to rule out first. I just wonder how they tell the difference from MS and other conditions with white matter lesions when symptoms are similar. Recently looking up MS diagnosis and the misdiagnosis rate is quite high. But seems they all have inflammation involved.
Are they all just subgroups of neuroinflammation??
I personally think they have no clue and the distinctions are arbitrary. When none of the lesions by themselves are definitive for MS, and obviously nothing about ME/CFS is definitive… Who knows.
Just stumbled across this - had never heard of this before. I have a lot of muscular issues (can't walk anymore) but my neurological exams don't look like MS I think - probably stuff like Babinski reflex, etc. Yet it all started right after getting sick in SE Asia. I was wondering if I got some enterovirus, even though I got a polio booster the week before. In addition, I got a typhoid and hepatitis B vaccination, and then I found this:
Obviously there was enough concern that they studied Hep B vaccines and demyelination, although they claim they found no connection (although they always seem to claim that unless something is painfully obvious).
Not sure it matters since it seems like no treatment, but frustrating to feel like you did 'everything right' and maybe the vaccination itself caused my problems. I realize plenty of other people have post vaccination stuff, but it's funny that I totally forgot I got vaccinated since I got sick in SE Asia - it never occurred to me the vaccine itself could've been involved.