ME Biobank: December 2016 Newsletter

[charles shepherd]

The December 2016 Newsletter from the ME Biobank is now up on the news section of the ME Biobank website:

http://cureme.lshtm.ac.uk/category/news/

The ME Biobank at the Royal Free Hospital forms part of the University College London Biobank and is funded by the ME Association Ramsay Research Fund

Dr Charles Shepherd
Chairman, ME Biobank Steering Group

 

[MEMum]

Just double-checking,
There is only one UK ME Biobank: incorporates Royal Free/UCL/London school of Hygiene and Tropical Medicine

 

[charles shepherd]

Just double-checking,
There is only one UK ME Biobank: incorporates Royal Free/UCL/London school of Hygiene and Tropical Medicine

Yes - this is the first and only UK Biobank for blood samples from people with ME/CFS

Website home page: http://cureme.lshtm.ac.uk

 

[Marco]

Well done the MEA and everyone else involved.

 

[AndyPR]

Just double-checking,
There is only one UK ME Biobank: incorporates Royal Free/UCL/London school of Hygiene and Tropical Medicine

Well, there will be a fatigue one once MEGA gets theirs set up, which they will call a CFS/ME biobank.

 

[charles shepherd]

Well, there will be a fatigue one once MEGA gets theirs set up, which they will call a CFS/ME biobank.

All of the blood samples that are now stored in the ME Biobank are from people who have Canadian and/or Fukuda defined ME/CFS

As everyone has a very detailed clinical assessment prior to acceptance we can also detect if they meet other criteria such as SEID

 

[AndyPR]

All of the blood samples that are now stored in the ME Biobank are from people who have Canadian and/or Fukuda defined ME/CFS

As everyone has a very detailed clinical assessment prior to acceptance we can also detect if they meet other criteria such as SEID

Have no doubts that this biobank has been set up correctly, I just have absolutely no faith in what MEGA plans to do.