ME Action: CDC taking comments on Draft Treatments only there are none

[Rufous McKinney]

This news release from earlier today points out we have an opportunity to comment on draft CDC treatment protocols.

https://www.meaction.net/2021/06/04...-comment/?mc_cid=264c13b51d&mc_eid=1af7ea8b95

warning- reading may increase blood pressure.....

So its not surprising that actual treatments are lacking, therefore the draft guidelines may not be very useful.

Cheery Excerpt:

"CDC has already announced that they will not pursue developing ME/CFS treatments guidelines at this time. #MEAction wrote to CDC Chronic Viral Disease Branch Chief, Dr. Beth Unger, and she stated:

“…the systematic review provided little new data and the process for guideline development would not be likely to provide an advance over what is currently available from the ME/CFS Clinician Coalition and IACFSME. We will be completing the Systematic Review and will not be proceeding with guideline development until clinical trial data becomes available.”​

GETS and PACE baggage- see discussion at the link above.

 

[Mary]

 

[Wishful]

Maybe #MEAction needs to investigate what benefits people get from promoting Pace and Get. It might only be one bureaucrat getting a promotion from a 'positive' report, but that's all it takes.

 

[Rufous McKinney]

Maybe #MEAction needs to investigate what benefits people get from promoting Pace and Get. It might only be one bureaucrat getting a promotion from a 'positive' report, but that's all it takes.

Snarky remark- I've tried to find a therapist on more than one occasion. I failed on every one of those occasions.

If CBT was in fact an effective treatment for ME, how might one obtain any?

 

[Wishful]

If CBT was in fact an effective treatment for ME, how might one obtain any?

Oh, is there more to CBT than just thinking 'happy thoughts'?

 

[Rufous McKinney]

Oh, is there more to CBT than just thinking 'happy thoughts'?

the rubber band trick.....You have a negative thought, you snap the rubber band your wearing on your wrist, bad bad self.

so: the thought well I'll be too tired if I do all THAT...snap that rubber band.

 

[seamyb]

You guys are gonna be so embarrassed when a paper comes out showing that the human cell has ears and responds to kind words.

 

[Rufous McKinney]

that the human cell has ears and responds to kind words.

well another approach would be to reward the self with chocolate, each time a positive nice thought won out!