Dakota15
Senior Member
- Messages
- 266
- Location
- Midwest, USA
Hey PR,
Hope everyone is as safe as can be during these strange times. Wanted to ask a quick question on here, as I hold this board in high esteem for knowledge & experiences.
Recently, I sought a second opinion from a fairly highly regarded MCAS physician in MN, just to see if they think MCAS could be playing a role in my ME/CFS illness (as my ME/CFS doctor suspects). This doctor is Dr. Shanda Dorff, for reference if any others have seen. On my evaluation with Dr. Dorff, she expressed to me that in her medical opinion, MCAS could explain my 2-Day CPET results (that my ME/CFS doctor, Dr. Chheda advised to complete), showing a significant drop in oxygen consumption and metabolic responses on the 2nd day of testing. That surprised me. I just always assumed PEM & MCAS were not really related - that I knew of at least (?).
I'm just curious if any others have come across this possibility or have been told this from their doctors (that their PEM could be due to MCAS), who have been suspected of MCAS. I know there seems to be a lot of overlap between ME/CFS & MCAS and I hope in time, science can answer.
Thanks for any intel you may provide.
Hope everyone is as safe as can be during these strange times. Wanted to ask a quick question on here, as I hold this board in high esteem for knowledge & experiences.
Recently, I sought a second opinion from a fairly highly regarded MCAS physician in MN, just to see if they think MCAS could be playing a role in my ME/CFS illness (as my ME/CFS doctor suspects). This doctor is Dr. Shanda Dorff, for reference if any others have seen. On my evaluation with Dr. Dorff, she expressed to me that in her medical opinion, MCAS could explain my 2-Day CPET results (that my ME/CFS doctor, Dr. Chheda advised to complete), showing a significant drop in oxygen consumption and metabolic responses on the 2nd day of testing. That surprised me. I just always assumed PEM & MCAS were not really related - that I knew of at least (?).
I'm just curious if any others have come across this possibility or have been told this from their doctors (that their PEM could be due to MCAS), who have been suspected of MCAS. I know there seems to be a lot of overlap between ME/CFS & MCAS and I hope in time, science can answer.
Thanks for any intel you may provide.
