Asa
Senior Member
- Messages
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Which governments (which departments/agencies) feature May 12 as ME/CFS Awareness Day? Pages where it is featured? Pages where it should be featured?
Below then, something for the next (??) CFSAC meeting?
CDC (last update 11 May 2015): "Chronic Fatigue Syndrome Awareness Day - May 12"... Uses terms "CFS" and "CFS/ME" except when quoting the title of the recent IOM report; Uses term "illness" (not disease). (Under "More Information", an AHRQ link links to a 2002 archived page.)
http://www.cdc.gov/features/cfsawarenessday/
[Edit: the answer to everything below is "No" - the gov media below did not feature May 12 as ME/CFS Awareness Day.]
Will http://www.hhs.gov/blog/ feature ME/CFS May 12 info? Other posts include National Women's Health Week (May 10-16); National Nurses Week (May 6-12); Public Service Week recognizes HHS employees (May 5-?); and "1st Annual" May: National Physical Fitness and Sports Month; etc.
HHS twitter? CDC twitter? OWH* twitter? [Edit: NCCDPHP twitter? NIH twitter?]
https://twitter.com/hhsgov and https://twitter.com/cdcgov and https://twitter.com/womenshealth [and https://twitter.com/CDCChronic and https://twitter.com/nih]
(Ex. May 11 National Women's Check-up Day; May 7 National Children's Mental Health Awareness Day) / (*IMO, ME/CFS should not be in OWH, but since it is...)
HHS.gov Awareness Months/Days..."In order to draw attention to health topics, governmental and non-governmental entities have designated certain months as specific health awareness months...". May 12 ME/CFS not listed. http://www.hhs.gov/ash/oah/news/health-awareness-months.html
CDC.gov Women's Health Awareness Months/Days (Source - Office on Women's Health, OWH): ...May 12 Fibromyalgia Awareness Day (No mention of ME/CFS) http://www.cdc.gov/women/observances/
Healthfinder.gov National Health Observances (NHOs): No ME/CFS, but "The 2015 calendar features more than 200 National Health Observances with up-to-date information and outreach materials..." http://healthfinder.gov/nho/ and http://healthfinder.gov/NHO/nhoyear.aspx?year=2015 and http://healthfinder.gov/NHO/nho.aspx?year=2015#month-5;
Note: NHOs include May 12-16 National Neuropathy Awareness Week.
Note: OWH sponsors (at least) three observances. (Why not May 12 ME/CFS?)
[Edit: Pages from all above links saved May 12 at http://archive.org/web/]
Other government observance/awareness pages?
[Edit: 2012 HHS CFSAC notice of May 12 as International ME/CFS Awareness Day: http://web.archive.org/web/20120708024540/http://www.hhs.gov/advcomcfs/cfsac-cfsa-day.html]
[The Office of Women's Health Blog did not feature May 12 as ME/CFS Awareness Day: http://womenshealth.gov/news/index.html]
Below then, something for the next (??) CFSAC meeting?
CDC (last update 11 May 2015): "Chronic Fatigue Syndrome Awareness Day - May 12"... Uses terms "CFS" and "CFS/ME" except when quoting the title of the recent IOM report; Uses term "illness" (not disease). (Under "More Information", an AHRQ link links to a 2002 archived page.)
http://www.cdc.gov/features/cfsawarenessday/
[Edit: the answer to everything below is "No" - the gov media below did not feature May 12 as ME/CFS Awareness Day.]
Will http://www.hhs.gov/blog/ feature ME/CFS May 12 info? Other posts include National Women's Health Week (May 10-16); National Nurses Week (May 6-12); Public Service Week recognizes HHS employees (May 5-?); and "1st Annual" May: National Physical Fitness and Sports Month; etc.
HHS twitter? CDC twitter? OWH* twitter? [Edit: NCCDPHP twitter? NIH twitter?]
https://twitter.com/hhsgov and https://twitter.com/cdcgov and https://twitter.com/womenshealth [and https://twitter.com/CDCChronic and https://twitter.com/nih]
(Ex. May 11 National Women's Check-up Day; May 7 National Children's Mental Health Awareness Day) / (*IMO, ME/CFS should not be in OWH, but since it is...)
HHS.gov Awareness Months/Days..."In order to draw attention to health topics, governmental and non-governmental entities have designated certain months as specific health awareness months...". May 12 ME/CFS not listed. http://www.hhs.gov/ash/oah/news/health-awareness-months.html
CDC.gov Women's Health Awareness Months/Days (Source - Office on Women's Health, OWH): ...May 12 Fibromyalgia Awareness Day (No mention of ME/CFS) http://www.cdc.gov/women/observances/
Healthfinder.gov National Health Observances (NHOs): No ME/CFS, but "The 2015 calendar features more than 200 National Health Observances with up-to-date information and outreach materials..." http://healthfinder.gov/nho/ and http://healthfinder.gov/NHO/nhoyear.aspx?year=2015 and http://healthfinder.gov/NHO/nho.aspx?year=2015#month-5;
Note: NHOs include May 12-16 National Neuropathy Awareness Week.
Note: OWH sponsors (at least) three observances. (Why not May 12 ME/CFS?)
[Edit: Pages from all above links saved May 12 at http://archive.org/web/]
Other government observance/awareness pages?
[Edit: 2012 HHS CFSAC notice of May 12 as International ME/CFS Awareness Day: http://web.archive.org/web/20120708024540/http://www.hhs.gov/advcomcfs/cfsac-cfsa-day.html]
[The Office of Women's Health Blog did not feature May 12 as ME/CFS Awareness Day: http://womenshealth.gov/news/index.html]
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