I have been meaning to write a summary of my thoughts on the MP for some time. I hope nobody minds if I post them on this thread rather than creating a new one.
Hopefully this won't be too disjointed.
I was on the MP for about 10 years. Clearly I wouldn't have remained on it for so long if I didn't get any benefit from it or if I didn't think there was something to it. The lack of any other treatment options was a factor too.
1) Medical support
As I said above, I would be very hesitant to try the MP without a knowledgeable doctor. The lack of a MP-aware doctor in my country was one of the reasons why I stopped.
The effects of the MP on your symptoms can be quite unsettling and you will need a doctor to be able to ascertain whether any new symptoms are side-effects, immunopathy
or something else that needs investigating.
is processed by the kidneys, so you will also need regular blood tests at least early on.
2) Effects of the medication
The medication used in the MP is olmesartan. After a few weeks of taking it, I suddenly found that my sensitivity to light
. I was unable to watch TV or use a computer without sunglasses. I couldn't leave the house during the day. Leaving the house at night was problematic given that even traffic lights were often too bright for my eyes.
However, my pain and inflammation virtually disappeared and my brain fog was better. I was able to read books for the first time in years.
Unfortunately I crashed more regularly and for longer. Olmesartan does seem to spark the immune system and that can be intense
to say the least.
I will say that the first time I took Olmesartan was quite miraculous. After 20 minutes, it was almost as if I could feel tiny switches in my body turning off the pain and inflammation radiating out from my gut.
Olmesartan also could shorten the duration of my PEM but this was somewhat hit and miss.
3) Length of time
Initially the MP was sold to me by a doctor as being a year-long treatment. However it is pretty obvious now that people are remaining on the MP for 10 years or longer without making a full recovery. I have spoken to a number of people who have recovered after being on the MP for 5-10 years, however whether the MP was responsible is moot in the absence of a proper clinical trial.
(more thoughts to come)