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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Hi Athene,
That's quite a line-up. Are you saying that you were treated with antibiotics without knowing the specific infections present?
I always appreciate your posts.
Marian
Some treatments do take years. eg Lyme treatments often do, but, my doctor was most emphatic that you should feel steady improvement and if you ever feel worse not better then the treatment is not right and your drug regime needs changing. The only exception to this is a herx reaction, which only happens at the start of treatment, within a few days, and cannot last more than 4 days.
Yes and no.
KDM did know exactly what was in my intestine, I had the Redlabs fecal test which quantifies everything in there. So from his point of view, that was what needed treating and he knew exactly what he was dealing with.
But no, since he did not know I had any of the bacterial infections I have listed above. He tested me for two of those infections but they came up negative in his test. He just uses the local phlebotomy lab in Brussels which does not have any specialised testing for such infections. Nearly all the infections I have listed above are notoriously difficult to detect in tests and so the initial negative is not surprising. The test they used for Lyme (ordinary ELISA) is a particularly useless one.
Hi Helios,
On the KDM version of the Marshall Protocol I took the abx one at a time for 8 days a month.
Then I got better testing to find out exactly what bacteria I was treating, since that had never been established. They are borrelia burgdorferi (Lyme), babesia, chlamydia pneumonia, mycoplasma pneumonia, erlichia (thought that has probably been cured by now) and a few virusus, mainly epstein barr and HHV6.
I got my tests at Infectolab in Germany. They use conventional testing methods but refined to be more sensitive than most labs.
Hi Athene
thanks for answering my earlier post. I have a few more questions for you.
Did your doctor give you a hardtime when you insisted on using this German Laboratory?
How do you know this German Lab is better than anything in Nth America?
My doc was fairly sure I had ricketssia, but I somehow expect he would be annoyed if I said this German Lab was better than the premier Australian Analytical Laboratories, and requested to have another blood test shipped to the otherside of the world.
Has anyone else here used Infectolab?