. He said my IGg would have to be around 4 (the reference range here is, 6-16, mine is around 5.1). He also said that I hade strong vaccine response.
The range here is 7-16. I qualified with a value of 5.7. 5.1 is not normal, around 11-13 is.
I have some blood tests coming up to retest my immunoglobulin levels
Good plan. It might be wise to also do PCRs for herpes viruses like Epstein-Barr, HHV6 or 7, cytomegalovirus, etc.
And, were the subclasses measured? IgG subclasses 1 through 4?
I once again explained my personal circumstances, my wife has long covid/severe ME/CFS and spends most of the day in bed. And my fatigue was disabling (I'm severe) and I also spend most of the day in bed. We have a 12 year old whose going through some challenging changes and we just cant help her and she needs it. He appeared to just switch off....
I'm sorry you are in this circumstance and that the doctor wasn't empathetic. What is the matter with these people? Can you find a new doctor? It definitely sounds like you need help.
I still have a few options up my sleeve, but to be honest I don't think they will improve my chances. The NHS is in disarray. My story is just one of thousands of failings by the NHS.
Be persistent. You deserve to get help and it sounds like you do need the immunoglobulins. Or perhaps you have some infections dragging your immunoglobulin level down that need treating.
The NHS is failing everyone but the situation for us is different because they don't provide any treatment for ME/CFS patients. We are denied medical treatment even for things we have and can be treated, that isn't the types of failure everyone else is experiencing.
The problem with the diagnosis of ME/CFS is that there's no treatment. I find the other 15 ICD10 codes to be far more useful in getting help.
If a patient with ME/CFS had a broken leg, they wouldn't set it? If this patient were in atrial fibrillation, they wouldn't treat it? If this patient had appendicitis, they'd do nothing?