Hi Mel,
No, but as long as I get to participate in the diagnosis and treatment decisions, I'm willing to keep working with her.
Getting proper care, even getting the honest attention of a qualified care provider is a problem, isn't it? I don't think the Portland, OR area has very many providers with experience with Lyme, ME/CFS and associated conditions. My hope is that my provider and I can get up to speed on whatever it is that's going on with me.
She takes this seriously and it was her clinic that made the discovery of reactivated EBV, so I have more confidence in them that I have in Vancouver Clinic, PeaceHealth, and the other clinics I have been to. If I have to be a guinea pig while we work out how to diagnose and treat whatever is going on with me, that will be okay for now. If we succeed, then we can add her to the list of experienced providers in my area. Seems worthwhile.
Paul M.