Allyson
Senior Member
- Messages
- 1,684
- Location
- Australia, Melbourne
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
POT/S with Lyme disease is a sign of active acute infection, not a tarnished immune system/nervous system after infection. .
Things like a viral infection is known to be the initial trigger of POTS. One can get rid of the inital trigger but still have POTS, so possibly POTS with lyme disease could also still be happening after the active acute infection.