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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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If your Lyme test is not at the positive number but it is above 0..
What does that mean?
I would think that a negative Lyme test should be 0's across the board
cfs being lyme certainly doesnt hold up to koch's postulates...Mycobacterium avium paratuberculosis (cause of chron's) or some other bacteria being spread by milk, causing our gut issues?
Isnt mycoplasma a better candidate rather than lymes,especially for uk folk,is it a similar treatment anyway.
Would 1 month Doxy be worth a try? Would it also kill co-infections?
cfs being lyme certainly doesnt hold up to koch's postulates. the antibiotics could be working on the gut flora/leaky gut bacteria. this is the main thing that bothers me daily now....not knowing beyond a reasonable doubt, what i am treating. yes, LTT was positive, but many have active infections due to weakened immunity from autoimmune process. just cant stop ruminating about this all day!
evidence to show that the abx could be working on gut is, bloating/gas/cramping stops when i take the abx...one person i know almost recovered on xifaxan, a gut antibiotic, and one almost recovered on Daosin/Histame.
in chron's, autoimmune process attacks gut lining, causing bacterial infections, which lead to chron's. treating these infections often results in repaired mucosa. maybe this is similar to what is happening in us (and antibiotic trials to treat gut infections, are going on for MS too).
i had die-off from clarithromycin, which acts on h. pylori.
most chronic lyme sufferers stop abx, and the disease returns, indicating the autoimmune process is still alive and well.
is lyme causing gut issues or is autoimmune process (triggered by infection such as EBV?) causing gut issues and weakened immunity causing active borrelia?
why do they say people who give up dairy often recover from lyme quicker? could this have to do with Mycobacterium avium paratuberculosis (cause of chron's) or some other bacteria being spread by milk, causing our gut issues?
this is the main thing that bothers me daily now....not knowing beyond a reasonable doubt, what i am treating. yes, LTT was positive, but many have active infections due to weakened immunity from autoimmune process. just cant stop ruminating about this all day!...most chronic lyme sufferers stop abx, and the disease returns, indicating the autoimmune process is still alive and well....is lyme causing gut issues or is autoimmune process (triggered by infection such as EBV?) causing gut issues and weakened immunity causing active borrelia?
The question may be alternatively phrased What portion of ME/CFS patients suffer with tick-borne diseases. If you want to focus specifically on Lyme, better still would be what portion are infected with Borrelia?