Hi, all.
Low dose naltrexone is currently the highest rated treatment for fibromyalgia on the CureTogether.com patient survey. It is also the highest rated actual treatment (i.e., not counting lifestyle changes) for CFS on the CureTogether.com patient survey. As you may know, I am a proponent of methylation treatment for ME/CFS. It is running in fourth position among the actual treatments for CFS, behind low-dose naltrexone, T3, and yeast treatments, in that order.
Best regards,
Rich
This is a little misleading, Rich.
Looking at the site today, the top treatments are:
1. Take frequent short rest breaks
2. Spend time in low-stimulation environment
3. Rest
4. Personal development
5. Ignore people who think ME/CFIDS is not real
6. Avoid biotoxins
7. Meditation
8. Change job
9. Diet changes
10. Avoid known allergens
11. Wheelchair
12. LDN
13. Gluten-free diet
14. Avoid mold
15. Eliminate/reduce sugar
16. Mindfulness
17. T3
18. Inverting body position
19. Yeast treatments
20. Avoid alcohol
21. Methylation treatments
22. Oytocin
23. Diaphragmatic breathing
24. Eliminate/reduce dairy
Avoiding things that are bad for you really is a treatment! This is especially the case when it's toxin that's been shown in hundreds of studies to be poisonous (like toxic mold) rather than just something that's bad for some people who are already sick from CFS or biotoxin poisoning (like gluten or other foods).
For 26 years, CFS doctors have been trying to convince people that the cure is going to come in a pill. So far, it doesn't seem to be working that way.
People don't have to do extreme avoidance to get better from CFS, but they do need to be living in a halfway decent place. If they're not, they're not going to be able to benefit from what you misleadingly call "actual" treatments. I got extremely sick on the methylation protocol, living in a moldy house, even though I benefited from it tremendously after I got to a safe place (and I'm very grateful to you for telling us about it!). People living in moldy places also cannot successfully treat yeast, usually. And they certainly cannot detox or kill pathogens.
If you would be so kind, it would be great if you would be more careful to distinguish between palliative treatments (like getting more rest) and actual treatments (like avoiding being poisoned).
With regard to LDN: I took a 4.5 mg capsule last night. I was up, just "awake," not feeling bad, for a couple of hours in the middle of the night. This morning I feel more clear, less fuzzy, than I can remember. I'm in a good location (Wyoming), and so i don't know if this would give me the same effect in a bad location. I'm pretty impressed at how different I feel though.
Keeping my fingers crossed that this will be a good thing. I will report back.
Best, Lisa
