I had a tilt table test this morning.
No significant hypotension, but I got POTS. I got lots and lots of POTS. As in, my heart rate went up from 90ish to 142 within the first three minutes
, and stayed up around that range for the full 30 minutes of the test. Happily for me, they didn't have to go to the second stage (nitroglycerin challenge) since they had the diagnosis in less than 5 minutes. The nurses were running around trying to get the doctors who had gone off somewhere, assuming there would be nothing to see for at least 10 minutes!
So there I am again, trying to educate a new set of doctors about CFS, and why their blithe recommendation to "do weight-bearing exercise" was a little more complex than they realized. (I may have argued my way into some PT for isometric exercises.) I also keep getting static about the fact that beta-blockers "might increase fatigue." But my primary care doctor is willing to work with me to try whatever beta blocker seems appropriate.
I know Nancy Klimas gives Atelenol 12.5 mg 2x a day - or at least that's what she gave someone I know with NMH. I don't know if the recommendation for POTS would be different. Posts in this topic seem to indicate that low doses are the usual recommendation for POTS with CFS. Does anyone feel that beta-blockers have made them more fatigued? I never had a problem with taking them, pre-CFS, for borderline high blood pressure.
(p.s. They also told me I have an unusually small heart. This was based on having seen my chest X-ray from last year when I was seen in the ER for palpitations. Though I'm pretty sure this is not the primary cause of my POTS, it apparently exacerbates it. I don't like the idea of having a small heart! I thought I was a big-hearted person!