Rachel Riggs
Rachel Riggs
- Messages
- 62
- Location
- San Diego
I have had blue lips + white face intermittently for 3 weeks now, and it is freaking me out. I have posted in MCAD, Reynauds and ME/CFS groups on Facebook, and I have seen my POTS doc who sees tons of weirdos like me and yet nobody has any idea what's wrong.
It happened the first time after an exceptionally good day, followed by a monumental crash the next day. That next day I noticed blue lips and later noticed my face was as white as a corpse. It has been happening intermittently now for the last 3 weeks and I cannot pin down a particular pattern or attribute it to anything specific.
The last three nights I have been queasy after dinner - that is highly unusual for me. I woke up this morning to a super puffy face, a few minutes later I noticed it was going white, and then when my color returned, I was left with dark bags under my eyes, also very unusual.
My POTS doc did an echocardiogram which looked fine. He said he has no idea what is wrong and that is very disconcerting.
It happened the first time after an exceptionally good day, followed by a monumental crash the next day. That next day I noticed blue lips and later noticed my face was as white as a corpse. It has been happening intermittently now for the last 3 weeks and I cannot pin down a particular pattern or attribute it to anything specific.
The last three nights I have been queasy after dinner - that is highly unusual for me. I woke up this morning to a super puffy face, a few minutes later I noticed it was going white, and then when my color returned, I was left with dark bags under my eyes, also very unusual.
My POTS doc did an echocardiogram which looked fine. He said he has no idea what is wrong and that is very disconcerting.
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