Looking for experiences w herpes antivirals

[Remissionqueen]

Hi peeps

Looking for experiences w herpes antivirals - valcyte & Valtrex for those where it helped.

If it didn’t help, please don’t comment i know it often doesn’t, I don’t have capacity atm for bad news.

So - if helped - what doses ? How quickly? Did it take time?

Thx so much

 

[cfs since 1998]

You asked for no bad news so I'll just say if you decide to try it, start with a very very tiny dose and work your way up.

 

[Remissionqueen]

You asked for no bad news so I'll just say if you decide to try it, start with a very very tiny dose and work your way up.

Oh I’m already on valcyte. I have zero issues and I already increased it. Just keen to chat to someone who improved and when they saw improvement etc

 

[Mary]

Olive leaf extract has shown benefit for treating HSV1 and HSV2. It also can be helpful against EBV, in case you were looking to try something else.

 

[Remissionqueen]

Olive leaf extract has shown benefit for treating HSV1 and HSV2. It also can be helpful against EBV, in case you were looking to try something else.

Thanks a bunch

 

[Hip]

You will find some Valcyte and Valtrex success stories in the first post of this thread. Typically people spend a year on these drugs, but they may start noticing the first benefits after a few months.

 

[Remissionqueen]

You will find some Valcyte and Valtrex success stories in the first post of this thread. Typically people spend a year on these drugs, but they may start noticing the first benefits after a few months.

Do you know how long they take it until they declare no benefit ?

 

[cfs since 1998]

Do you know how long they take it until they declare no benefit ?

The late Dr. Lerner recommended giving it at least 12 months. I'm attaching one of his slideshows.

 

[Treeman]

I took aciclovir and moved from severe to sever end of moderate over about 18 months. I get shingles outbreaks and still take it although it’s not 100% controlling it.

I also started taking truvada and noticed an immediate improvement from severe end of moderate to middling of moderate. I also noticed that I no longer get shingles flair ups. So it maybe that it helps the aciclovir or it’s actually better than the aciclovir at controlling shingles. Good luck

 

[Remissionqueen]

I took aciclovir and moved from severe to sever end of moderate over about 18 months. I get shingles outbreaks and still take it although it’s not 100% controlling it.

I also started taking truvada and noticed an immediate improvement from severe end of moderate to middling of moderate. I also noticed that I no longer get shingles flair ups. So it maybe that it helps the aciclovir or it’s actually better than the aciclovir at controlling shingles. Good luck

Thx. When did you notice improvement on aciclo? I’m on valcyte for 5 months and feel nothing I am improving at my own slow pace which I don’t attribute to valcyte

 

[Treeman]

Thx. When did you notice improvement on aciclo? I’m on valcyte for 5 months and feel nothing I am improving at my own slow pace which I don’t attribute to valcyte

I think the improvement was so slow it was only when I looked back I could say it improved me rather than just the usual variation from day to day with the illness.

 

[Remissionqueen]

I think the improvement was so slow it was only when I looked back I could say it improved me rather than just the usual variation from day to day with the illness.

Do you think, since I’m not having negative effects, it’s worth to continue?

 

[Treeman]

Do you think, since I’m not having negative effects, it’s worth to continue?

For me it was an easy decision due to the shingles outbreaks. I’ve tried many things that didn’t help but only for about a month then stop. I don’t think it’s a great idea taking medication with no benefit medium to long term but as hip said above it’s usual to take it for a year, it seems to be slow acting. I still take 400mg 3 times a day with regular blood tests showing everything is ok.

When deciding if I should take a medication I look at my symptoms what information I get from testing and the potential benefits of the medication for my situation.

 

[Hip]

Do you know how long they take it until they declare no benefit ?

I believe for Valtrex, which Dr Lerner gave at a dose of 1000 mg four times daily for EBV ME/CFS patients, he said the benefits start to become noticeable after 3.5 months.

There is some info about Dr Lerner's Valtrex and Valcyte treatment of herpesvirus ME/CFS in this post.

 

[ilivewithcfs]

I took Valtrex at a standard dosage mentioned in the instruction (i don't remember how much exactly). It started working after about 2 weeks, maybe a little less. It worked really well for a while, until it started to cause insomnia for me, so I had to give it up. After that some symptoms returned,but not all the way. There was a lasting benefit that stuck.

 

[Remissionqueen]

I took Valtrex at a standard dosage mentioned in the instruction (i don't remember how much exactly). It started working after about 2 weeks, maybe a little less. It worked really well for a while, untill it started to cause insomnia for me, so I had to give it up. After that some symptoms returned,but not all the way. There was a lasting benefit that stuck.

Oh very nice

 

[Remissionqueen]

I believe for Valtrex, which Dr Lerner gave at a dose of 1000 mg four times daily for EBV ME/CFS patients, he said the benefits start to become noticeable after 3.5 months.

There is some info about Dr Lerner's Valtrex and Valcyte treatment of herpesvirus ME/CFS in this post.

Thx