YippeeKi YOW !! Ditto - Agree! They're polydrugging us with Drug #2, #3, #4 in attempts to hide the nasty side effects of Drug#1. Plus Medicating Normal (<<a new documentary). Creating the disaster and capitalizing off of it.
One thing I'd add regarding making ME infinitely worse... the months of glutamate flood during and post w/d that batters pwME - like 24/7 exercise with no rest for months on end. I had akathesia for the first 5 months along with the "electrocution" symptoms, severe sweating and heat intolerance that made it impossible to sit or lie down. I collapsed several times from pushing on my feet with already-pretty severe ME, including short bursts of heavy yard work with chainsaws and shovels like I only did pre-ME (and I'm a 60 year-old, 115 lb female now!). I had little doubt that was going to "make ME infinitely worse". It was stuff like that in my first years of ME - when I didn't know what I had for certain, didn't know you weren't supposed to exercise - that did me in 23 years ago, and again in the years after that when I insist on pushing.
I just hope the info coming online in recent years - especially from Europe where they're WAY ahead of us on this issue - is enough to prevent a whole new generation from this abuse and neglect. I'd love to advocate, but, well, just these posts every couple weeks are killing me!
