Jesse2233
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On LymeNet there is a (loooooong) thread of users purchasing soft hyperbaric oxygen chambers (mHBOT) making substantial progress and in some cases full recoveries. Most (if not all) of them have hallmark symptoms of ME/CFS and some also carry it as a secondary diagnosis.
The key difference from the HBOT reports I've read on PR and the ones on this thread are frequency and quantity of use. Some of these patients went a full year every day before seeing significant improvement. Official HBOT studies (scarce as they are) are much shorter term, encompassing only 20-60 sessions.
There has been a lot of debate on whether Chronic Lyme and ME/CFS are the same disease, I'm not interested in relitigating that here. Instead I want to share this thread to give hope, and to see if anyone here has had a similar experience.
One user's remarkable story:
The key difference from the HBOT reports I've read on PR and the ones on this thread are frequency and quantity of use. Some of these patients went a full year every day before seeing significant improvement. Official HBOT studies (scarce as they are) are much shorter term, encompassing only 20-60 sessions.
There has been a lot of debate on whether Chronic Lyme and ME/CFS are the same disease, I'm not interested in relitigating that here. Instead I want to share this thread to give hope, and to see if anyone here has had a similar experience.
One user's remarkable story:
Hello, all...
I was just about to start a new thread on mild hyperbaric, then found this one...
I believe you both are referring to my story:
I had severe neurological Lyme w/Babesia & Bartonella for 8 years...considered an antibiotic failure, and so ill I was homebound for 5 years straight.
My symptoms were extreme and relentless; too many to list here. I was told, even by LLMD's, that I needed a miracle, and there was nothing more they could do for me (I tried many, many protocols with never any improvement, just a continual spiral downward).
I eventually became so toxic and environmentally sensitive that I could do no formal treatments (except homeopathy) for 5 years before starting MILD hyperbaric treatment w/supplemental oxygen (I bought my own chamber and self-treated 1 hour daily).
I now have my life back...working again, running (I had been a runner for 17 years, pre-Lyme), traveling, etc. It has been a miraculous recovery, and it is 100% due to mHBOT (along with meticulous diet, and gradual exercise).
I believe success depends on the frequency and consistency of use...many people say they "tried hyperbaric, but it didn't work"...but if you query them, inevitably they didn't do it consistently or frequently enough...or for a long enough duration. You must be committed to this treatment to have success.
I almost made the fatal mistake of returning my chamber after 40 consecutive "dives", not feeling any improvement at that point. Fortunately, I was talked into continuing treatment, and felt the first "change" (not necessarily "improvement") after about 2 months.
It was a rocky, 2-step-forward, 1-step back road, but after several months, although I was not completely well, I was functional again, and after 1-1/2 years, I was "back"...
Now, 2 years from the beginning of treatment, I am still noticing benefits from the chamber...and truly have my life back...very active again...no medications...no restrictions...
Low (pressure) and slow WORKS...I'm living proof...
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/125201?