Maier says the P2P meeting is in February. Involves federal members with an interest in ME/CFS research.
Apparently it was an easy sell, due to a need (people have something wrong with them), no FDA approved treatment, no cure, and it's a public health issue.
Next phase is a working group meeting: composed of ME/CFS experts, feds, advocates, caregivers.
3 questions for the meeting: Agency for Health Research Quality (AHRQ) - contract.
Task I
How do ME and CFS differ?
What tools and measurements?
Characteristics of responders to treatments?
Research regarding diagnosis?
...
Task II
Topics (above)
Speakers: clinicians, researchers, pro or con, balanced contrary opinions, opinion leaders
Format: 2 days, 20 minute time limits
Task III
Nominate panel members: USA citizen, highly recognized experts in their area (not ME/CFS) such as ethicists, attorneys, economists, cannot be "conflicted" with ME/CFS.
Content experts: Working group members, speakers, reviewers, can be conflicted/opinioned/biased.