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Maybe this is just me, but I'd like to know the most common infections those in the forum have. That way I can make sure I get testing done for anything that sticks out. But aside from making a one-off Poll that gets a couple dozen responses and then disappears in the abyss, I'm only left with the option of searching threads and stumbling on things that might help improve my condition.
For instance, I've been documenting others infections and abnormalities, so I can isolate some common denominators. I'm surprised at how many people mention a Yersinia Enterolitica infection. That, and Lyme, and Mycoplasma. Yersinia is now at the top of my list for things to test for. And I would have tested for Mycoplasma ages ago had I realized.
Interesting Sidenote: Lot of people here seem to have abnormal Alkaline Phosphatase, and Ferritin. Not sure how relevant it is, but interesting
I also like one-on-one conversations with those who seem to share good portions of my condition. But you have to get really lucky to find your twins on here.
If we were able to readily see people's infections and diagnosed conditions, I feel like that transparency would speed up our diagnoses and treatment.
I'm not really suggesting anything specific. I guess I'm just throwing it out there. But I am going to edit my signature right now so others can see my info.
For instance, I've been documenting others infections and abnormalities, so I can isolate some common denominators. I'm surprised at how many people mention a Yersinia Enterolitica infection. That, and Lyme, and Mycoplasma. Yersinia is now at the top of my list for things to test for. And I would have tested for Mycoplasma ages ago had I realized.
Interesting Sidenote: Lot of people here seem to have abnormal Alkaline Phosphatase, and Ferritin. Not sure how relevant it is, but interesting
I also like one-on-one conversations with those who seem to share good portions of my condition. But you have to get really lucky to find your twins on here.
If we were able to readily see people's infections and diagnosed conditions, I feel like that transparency would speed up our diagnoses and treatment.
I'm not really suggesting anything specific. I guess I'm just throwing it out there. But I am going to edit my signature right now so others can see my info.
