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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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List of all your MCAS symptoms

Hd-x

Hd-x

Senior Member
Messages
244
1. Foods - eating wrong things = ending up in emergency room with Briden/SubIleus
2. nausea & vometing (again food intolerance triggered)
3. itching (again food intolerance triggered)
4. hypertensive derailments = heat intolerance triggered
5. rashes = sweating & exercising triggered (lol, I am allergic to my own sweat :wide-eyed:)
6. stuffy nose, hay fever, difficulty breathing = pollen triggered
7. heart arrythmia = seems to be CNS / stress or exercise triggered
8. Cytokine & Inflammation = bladder, prostata, canker sores, dental, dermal and "some" other problems
9. IBS / malabsorbation caused by leaky gut
10. "sick-building-syndrome" (some chemicals in rooms trigger this)
11. deaf fingers, paresthesia = trigger unknown

xx. Brain fogging (remained unclear if MCAS or FM/CFS related)
xx. muscle pain (remained unclear if MCAS or FM/CFS related)
xx. swollen Lymph nodes (remained unclear if MCAS or CFS related)
 
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Dakota15

Dakota15

Senior Member
Messages
320
Location
Midwest, USA
I've shown elevated PGD2 levels, elevated Prostaglandin F2 alpha levels, a biopsy showing 60 mast cells per high-power field (hpf), and to this day I have no pulse on what triggers MCAS or how this intersects with PEM or my ME/CFS diagnosis. I know that doesn't help..
 
Galixie

Galixie

Senior Member
Messages
220
Itching
Flushing
Hives
Dematographism
Headaches
Irritability
Nausea
Vomiting
Diarrhea
Fatigue
Sinuses swelling shut
Lips/tongue tingling
Coughing
Brain fog (so I'm probably forgetting some also)

My triggers constantly change. The only consistent trigger I have is grass, which is unavoidable. Some other triggers I've experienced have been scents (such as freshly cut pineapple or other foods, perfumes, or cleaners), hot water, stress, dairy products, and red meat. I've also had reactions where I have no idea what the trigger was.

I've also woken in the middle of the night having a reaction. The middle of the night reaction might be due to the body's normal cycle of histamine release (aka histamine dump).

Everyone with mast cell activation presents very differently.
 
Sherpa

Sherpa

Ex-workaholic adrenaline junkie
Messages
699
Location
USA
  • Neuroinflammation that corresponds to stress - often I feel inflamed on Friday evening after a long workweek, etc.
  • GERD
  • Anxiety
  • OCD
  • Brain Fog
  • Alcohol intolerance
  • Caffeine intolerance
  • Grain / gluten intolerance
  • (High histamine) food intolerance
  • "Travel intolerance" (eating and sleeping in random places can cause a flare)
  • Insomnia
  • Light and sound sensitivity
  • Scent sensitivity
  • Chemical sensitivity
  • Poor stress tolerance
  • Fibromyalgia
  • Strong reaction to insect bites
 
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