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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I am impressed that Dr Lipkin praised Dr Mikovits and defended her from questioning that could be construed as criticism.
I thought it was very warm comfort - I can't think of anything better than having someone of Lipkin's stature and expertise doing a wide-ranging study looking for pathogens and host response abnormalities even as we speak!"at least they haven't given up on us" is all I could think. cold comfort, but it's something.
Yup, can't argue with that!I think the cold comfort part is that we are waiting and waiting... and waiting. I agree, it is warming in some ways. but, during my own health crisis I would like to at least be able to try some novel (but expensive and geographically unattainable) treatments, ritux or amp. anything.
getting a good set of samples that control for many factors. These form a good basis for future research and samples are available to other researchers.
There wasn't anything there that could lead in the medium term to a treatment or a cure.
Lipkin and Alter sounded as if their minds were made up that a cause (i.e. new pathogen) would not be found
It's back to the host response theory and that hasn't lead to any treatments so far
There wasn't anything there that could lead in the medium term to a treatment or a cure.
Lipkin and Alter sounded as if their minds were made up that a cause (i.e. new pathogen) would not be found
It's back to the host response theory and that hasn't lead to any treatments so far