Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Well I guess until NIH pull their finger out we will need to donate what we can here https://giving.columbia.edu/giveonline/?schoolstyle=5881&alloc=21677I don't get it, for the past year we have been hearing about all the samples they have planned or taken, but still no analysis?
Mady Hornig said more or less the exact same thing at iime conference back in the summer.
Eager to analyse is great, but unless there is funding it won't happen.
I don't get it, for the past year we have been hearing about all the samples they have planned or taken, but still no analysis?
Mady Hornig said more or less the exact same thing at iime conference back in the summer.
Eager to analyse is great, but unless there is funding it won't happen.
Fundraising total update, $135,195 from 264 donations!
http://bit.ly/DonateToDrLipkin
Many thanks to our wonderful supporters for your generosity.
For those of you who consider donating but perhaps think that a small donation won't make a difference, please consider this: if 7,000 followers of this page all donated $10 (the minimum amount possible) just once then we would add another $70,000 to the total above. If just half the number of followers, 3,500, donated just $10 a month, an amazing $420,000 could be raised. So while the total figure that we are aiming for may seem daunting, many modest donations can make light work of it.
Please donate today at http://bit.ly/DonateToDrLipkin
(Please note that we have amended this post to accurately show the minimum possible donation, we apologize for any confusion this might have caused.)
I'm broke as hell and I'm going to give 10 dollars. C'mon people.
Exactly, and that is what they want...so that they can apply for more $$$ and keep the gravy train rollin'They will never get the 5 million dollar so this study will never be finished.
would you like to expand on that?This study is one of the biggest and most rigorous ever and you aren't bothered about it ?
I don't understand your comment.
The OMF study is great but it's 20 Patients at one time point AFAIK.
Hansons study doesn't come close in terms of scope.
KDM ? Are you joking?
As patients we need as much good quality research as possible, this is top quality.
Ex...fuckin'...zactly.why not? There were already some big donors who already donated more than 1 million dollar, Hutchinson family gave 10 million dollar (Also Lipkin got quite a lot of money from that pocket)
Spend your money wisely, people.If we all gave a couple of bucks, it could make a big difference! We shouldn't have to fund our own studies, but, I would rather give a few dollars here and there and kick start the research than wait for the NIH.
Besides, it's called CII's ME/CFS MONSTER STUDY!