Life changing response to successive surgical interventions on cranial venous outflow: A case report on CFS, Higgins et al., 2023

[kushami]

A patient diagnosed with autonomic dysfunction, vestibular migraine and CFS turns out to have narrowing of the jugular and other veins leading away frrom the heaf. Procedures and surgeries to improve the situation lead to a marked improvement in her health.

https://pmc.ncbi.nlm.nih.gov/articles/PMC10097901/

Well worth a read.

 

[andyguitar]

A patient diagnosed with autonomic dysfunction, vestibular migraine and CFS turns out to have narrowing of the jugular and other veins.

Problem was found using " CT and catheter venography" which "Identified focal narrowings of both jugular and left brachiocephlic veins". This would be a fairly straightforward procedure.

 

[kushami]

I should mention that some of the patient’s symptoms had started 25 years previously after a bicycle accident, which was considered minor at the time. The authors don’t say what role they think the accident played in her illness, e.g. did she have existing anatomy that was susceptible to damage from an injury like this. They also don’t speculate as to why her symptoms worsened over the years.

I’m sure they actually have plenty of ideas on this, but without imaging from the time of her accident, they have to stick to the facts for this kind of publication.

 

[Oliver3]

Problem was found using " CT and catheter venography" which "Identified focal narrowings of both jugular and left brachiocephlic veins". This would be a fairly straightforward procedure.

Would be interesting to see how maby if us feel a blockage/ pressure sensation in the neck.
I sometimes wonder if the narrowing of vessels that enable blood flow to the brain are narrowing in an attempt to protect the brain from toxic phenomenon.
I know lots of people with autism have this reduced flow.
You can see that pallid look in all us sufferers as well as sufferers of ash etc..
So it may be structural and/ or a a protective response by the vascular system.
Also endothermic damage is present in us.
However, I'm sure there's many normal patients with venous narrowing that don't suffer dysautomnia.

But it does seem rather a strong connection doesn't it?

 

[Oliver3]

Does anyone know what ron Davies found when he investigated tgis very issue?

 

[kushami]

This article by some of the same authors is worth reading too. I’m afraid I’m too tired to summarise it.

“Cranial venous outflow insufficiency; rendered almost invisible to radiological imaging by circular reasoning“

https://www.jocn-journal.com/article/S0967-5868(24)00421-1/fulltext

 

[Oliver3]

I wonder if this is why the perrin technique has marginal gains for us.
I met perrin..the nose pinch technique he showed me relieves the congestion feeling at the base of my neck everything.
Maybe it's not just lymph that I'd being moved

 

[Rufous McKinney]

I’m afraid I’m too tired to summarise it

Highlights​

•
Cranial venous outflow insufficiency is mired in controversy.
•
This reflects a mistaken view of normal craniocervical venous anatomy.
•
The cause is a long-established pattern of circular reasoning between clinician and radiologist.
•
The result may be a failure of diagnosis on a significant scale.

 

[Rufous McKinney]

Sentence from the conclusion: (from paper above)

" If there is opportunity here, however, it needs to be recognized that preconceived notions regarding the absence of organic disease in patients with certain symptoms and syndromes mean that any frequently observed structural anomaly in these patients will be incorporated into the common mental archive of normal radiological appearances rendering it almost immune to discovery as a pathological entity"


This paper below is cited in the paper above: it hypothesizes that these factors are influencing Chronic Fatigue Syndrome.

Higgins, J.N.P. ∙ Pickard, J.D.
A paradigm for chronic fatigue syndrome: caught between idiopathic intracranial hypertension and spontaneous intracranial hypotension; caused by cranial venous outflow obstruction
Fatigue. 2021; 9:139-147 Epub 2021 Jul 26. PMID: 36514384; PMCID: PMC7613918


- a few years ago, I struggled to get medical attention for my eye troubles. In the second consultation, I was informed: "You Don t' have Intracranial Hypertension".

No tests were run. A big waste of time. Brought my husband with me. Later he asked Why No Tests Were Run?

I was in the room with the owner of the Eye Clinic. He said: I'd have to go to UCLA.

- Funny, these recommendations. Im not going to Stanford (my GP said I:d have to go to Stanford) and I ain't going to UCLA.