I just skimmed the CFIDS newsletter of Fri Dec 4
Included is this statement
I completely disagree with this and am about to email them at cfidslink@cfids.org saying so. I think the Dr Oz show was incredibly responsive to the feedback on the first BAD segment with Dr Teitelbaum, and that the show did a great job of having expert, credible guests, and cramming accurate info into the 12 minute segment.
CFIDS seems out to lunch on this. People were rightly upset after the Dr Teitelbaum segment - did they comment on that and I missed it? I haven't seen much negative response to the Dec 3 segment. Their blurb seems to suggest that people expected the Dr Oz show to change its format just for the segment on ME/CFS.
Not impressive. It seems to me that they are damaging the good advocacy work done and the good response to it by the Dr Oz team.
hmmmm - Not sure if I should write to the Dr Oz team and ask them to ignore the CFIDS comment as CFIDS is trying to come out of the dark ages communication-wise and hasn't quite figured it out yet.
islandfinn
Included is this statement
Dr. Oz featured CFS and XMRV on his Dec. 3 syndicated television program. The 13-minute segment disappointed many who hoped for a more comprehensive report. Here's a companion article by his guest expert, Dr. Donnica Moore.
I completely disagree with this and am about to email them at cfidslink@cfids.org saying so. I think the Dr Oz show was incredibly responsive to the feedback on the first BAD segment with Dr Teitelbaum, and that the show did a great job of having expert, credible guests, and cramming accurate info into the 12 minute segment.
CFIDS seems out to lunch on this. People were rightly upset after the Dr Teitelbaum segment - did they comment on that and I missed it? I haven't seen much negative response to the Dec 3 segment. Their blurb seems to suggest that people expected the Dr Oz show to change its format just for the segment on ME/CFS.
Not impressive. It seems to me that they are damaging the good advocacy work done and the good response to it by the Dr Oz team.
hmmmm - Not sure if I should write to the Dr Oz team and ask them to ignore the CFIDS comment as CFIDS is trying to come out of the dark ages communication-wise and hasn't quite figured it out yet.
islandfinn