I have this but I don't have it only at bedtime; I'm like this 24/7. All my symptoms are worse on the left side--migraines, coldness and weakness and I've always wondered if I could possibly have had a stroke and not known it? Aren't stroke symptoms one sided as well?
Vli- Sorry to know your condition is much worst than mine. Did your doctor order any neurological investigations to exclude stroke and other brain disorders?
I used to get that symptom too when my ME was more neurological, (I cant remember now thou which foot was hot and which was cold), I didnt thou just get it at night.