Lecture by Dr Kerr to the N.I. Hope 4 ME 30th Oct on Youtube now

[Countrygirl]

On 30th October 2018 the N.I Hope 4 ME group hosted a talk by Dr Kerr, but unfortunately the live streaming of the lecture failed.

Now the lecture is available for you to watch on Youtube. Thank you Joan!

 

[S-VV]

Very interesting. He talks about cimetidine, an H2 blocker for EBV, which was used by J Goldstein 20+ years ago

 

[Starlight]

It was interesting to see that chlamydia pneumonia is one of the triggers. It is also common in Lyme disease and other tick borne illnesses. It is good to see possible connections for those who are diagnosed with ME and tick borne illness. I am so delighted to see him back and still involved with ME Cfs.

 

[Abha]

Very interesting. He talks about cimetidine, an H2 blocker for EBV, which was used by J Goldstein 20+ years ago

Re cimetidine...that is interesting.I have just listened to Dr Kerr's talk on youtube.I wonder if anyone on this Forum has used this drug.If it is an old drug it is probably cheaper nowadays.The other drugs that Dr Kerr mentioned are expensive and maybe not available.I wonder too if one could get cimetidine on the NHS. Dr Kerr confirmed too that OPs(malathion in my case) can trigger ME/CFS in some people(30 min mark)

 

[Lisa108]

Re: cimetidine.
Dr. Kerr's sources for the effectiveness of cimetidine were 2 letters to the editor by Jay A. Goldstein, M.D.
I found the second letter
"Goldstein, J.A. Cimetidine, Ranitidine, and Epstein Barr Virus infections. Annals of Internal Medicine 1986, 105(1): 139"
sci-hub link (page 4)

in which Dr. Goldstein refers to a previous letter, where he explains the dosis of cimetidine:
"Goldstein, J.A. Cimetidine and mononucleosis. Ann Intern Med 1983 Sep., 99(3): 410-1"
Sci-hub link (page 2)
(it's 300 mg, three times a day)

The letter I didn't find is
"Goldstein, J.A. Treatment of chronic Epstein Barr Virus disease with H2 blockers. Journal of Clinical Psychiatry 1986 Nov., 47(11): 572."

Sounds too good to be true...

 

[xcell]

This study shows that Cimetidine also increases IL-2 production (which seems to be low/very low in many patients): https://www.ncbi.nlm.nih.gov/pubmed/3497460

 

[Lisa108]

After reading the Goldstein papers I decided to give it a try. My GP prescribed Cimetidine and I'm taking 3x300 mg since Nov. 2.
What I can say so far: it helps my sleep! Restored the circadian rhythm, makes me sleep deeper and lets me wake up feeling a bit refreshed...

Update Nov. 15: had to stop taking Cimetidine because of heartburn and reflux...