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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Latest progress report on my recovery

Messages
51
Despite the slim chances of my recovery continuing, I cannot deny that this is what is still happening. It is difficult to believe that I only seem to need between 6 and 7 hours of sleep in every 24 hour period, with no naps during the day.

At the moment, I am experiencing significant muscle fatigue in both legs. I think that this is a result of deconditioned muscles that have been affected by long periods of inactivity when I had significant ME/CFS symptoms. I expect that with some sensible management they can soon return to feeling normal.
 

JES

Senior Member
Messages
1,322
You are the person taking statins I reckon? I trialed a red yeast rice supplement a couple of years ago, which contains a statin-like chemical monacolin K. I remember I soon afterwards started experiencing muscle aches, both in the night and after walking and an increase in my neuropathy from a ridiculously low dosage of this supplement. I don't normally have any muscle symptoms, so it was certainly a side effect of this supplement.
 
Messages
51
Were you experiencing that before the statins?

Before taking the statin, I was resting/ sleeping for 13 hours in every 24 hour period. During this time physical activity was greatly reduced, compared what it is now.

I have found that my muscles are slowly starting to feel normal again. The fatigue that I am experiencing is reducing, although I still expect this to take a few more weeks. I think that this is understandable because it takes time and effort to get inactive muscles working like normal again.