Key Pathophysiological Role of Skeletal Muscle Disturbance in Post COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Accumulated

[sb4]

BP swings from high to low, I did have echocardiogram, ECG, 24hr holster, etc, but most of these were 8 years ago, when I was only 5 years in.

I'm not sure what you mean by fear of heart and veins. I do feel like it's doing long term damage.

I feel like we are hypersensitive due to our amped up nervous system.

I feel worse after all meals but less worse after low carb meals. Most worst are high carb.

 

[Oliver3]

What I mean was, was their any trauma around the heart for you growing up.

To clear I don't think this is psychosomatic. I think it's smthg real made worse because we ca. Feel so much.

If you have an emotional trauma attached to that it's gonna amplify it. But my friend who has the same symptom has no fears. It's just worth trying to investigate that on your own mind.

I wonder if you do have MCAS . Probably most of us do to be honest.

I remember a moment when I was 26. I came down with flu. Before that time I just felt ill. But it didn't effect me emotionally.
I remember the change came that time. The first thing I felt when getting sick was fear..a panic attack..then flu came it was like the lines between pain, emotional feelings, and illness became blurred.

So many things happen with this illness it's hard to pin point one thing isn't it

 

[sb4]

@Oliver3 No trauma around the heart growing up for me. Didn't even think about it until this all started.

Yeah I agree its not psychosomatic and I also agree these things can be made worse with negative thinking / anxiety.
For me, this condition causes your SNS to light up, your health to degrade, etc which can lead to anxiety / negative thinking, which can then worsen the overall condition in a loop. Some people can get themselves out of the loop via brain rewiring, for others it's not enough.

When I originally came down with this it was freshers week and I had just moved into my student accommodation. So there was a certain amount of stress / anxiety just with that being new. I then got a real bad sore throat / tonsilitis from going out on fresher, and then I caused my body even more stress by taking double the max dose of NSAIDs on an empty stomach and giving myself a stomach ulcer.

So I can see why my body would interpret that as a massively stressful event and rewire my ANS. I could also see that NSAID dose allowing whatever infection I had to "burrow deep" somewhere in my body or impair my immune system enough to cause chronic consequences. Its probably a mix of both.

No panic attack though.
I agree, it is very hard indeed to pin point one thing.

 

[Oliver3]

Yes definitely not psychosomatic. I debated whether to even mention that but I can see you took it in the right way.
I always come back to the root cause, or the ground zero being a weakness in the tissue. It informs everything. Structural integrity, hormones, predisposition to vulnerability immune system, muscles. If Ron Davies thinks he can retro engineer this, I believe him.
There's plenty of people with eds who are not suffering like we are. Ron himself has eds. But smthg puts us past the event horizon.
Like I said about my brother, he has an intense anxiety disorder...but he has resilience to it. Why? I think different connective tissue