Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The US is good with organizing emergency charitable support services, like after a disaster, but doesn't really have a history of providing long-term support for any group of people.any idea why the charitable / not-for-profit sector doesn't step up?
Our country, both government and non-profit sectors, has a strong focus on providing emergency charitable support for people throughout the world. It's also big on helping developing nations with high-profile health issues like HIV/AIDS, ebola, and so on. This is not a bad thing. Day-to-day support of our own citizens with long-term health issues has not been our strength, which is a bad thing. Unfortunately, there's only so much money to go around and our priority has been more in helping others than helping ourselves.
Pandora is a long way from me and even farther from @Sushi. The US is a mighty big country.
By the way @Gingergrrl, sorry to hear you had to give up your career. I am in the same boat so know what a blow it is.
I see you do some volunteer work yourself. Is that for CFS?
I don't think they have anything like this in the USA @Gingergrrl ?