The University of Bristol seems to be a convergence point.I was surprised to hear that Davey Smith was on the board of a psychology journal.
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The University of Bristol seems to be a convergence point.I was surprised to hear that Davey Smith was on the board of a psychology journal.
and here is the email I sent AfME soon after the PACE Trial results were released:Even Action for ME have posted a link on their Facebook
Action for M.E.
4 hrs ·
The Journal of Health Psychology yesterday released a special issue dedicated to the PACE trial as part of a continuing scientific debate into the trial’s validity.
http://journals.sagepub.com/toc/hpqa/current
The PACE trial, the only large-scale research trial undertaken to test the effectiveness of cognitive behavioural therapy (CBT), graded exercise therapy (GET) and pacing, as reliable treatments for people with M.E., has been subject to considerable scrutiny and criticism since publication of its initial results in 2011.
Action for M.E. takes the position that it is vital that valid questions, raised about the science conducted as part of the PACE trial, be addressed as a matter of urgency, and that the experiences of patients who have experienced harm as a result of undertaking GET and/or CBT must not be ignored. (Please note Action for M.E. does not recommend any single form of intervention or treatment for M.E.)
Journal of Health Psychology - Volume 22, Number 9, Aug 01, 2017
Table of contents for Journal of Health Psychology, 22, 9, Aug 01, 2017
JOURNALS.SAGEPUB.COM
No. And it doesn't oppose any either.(Please note Action for M.E. does not recommend any single form of intervention or treatment for M.E.)
Action for M.E. takes the position that it is vital that valid questions, raised about the science conducted as part of the PACE trial, be addressed as a matter of urgency, and that the experiences of patients who have experienced harm as a result of undertaking GET and/or CBT must not be ignored. (Please note Action for M.E. does not recommend any single form of intervention or treatment for M.E.)
I get the impression they are waking up to a new reality.I get the impression that there's no-one who has half a clue of what's going on as any power at Action for ME.
I get the impression they are waking up to a new reality.
They seem to be keen to say the right things, maybe they were losing patients?
Thank you very much.View attachment 22799
@TomKindlon
Congratulations to all of the fine writers who have had their papers published in the Journal of Health Psychology.
I'm so grateful for their hard work. I hope that the PACE trial researchers will soon be held accountable for the suffering they have caused.
Fantastic, @ballard, well done! i will be tweeting.View attachment 22799
@TomKindlon
Congratulations to all of the fine writers who have had their papers published in the Journal of Health Psychology.
I'm so grateful for their hard work. I hope that the PACE trial researchers will soon be held accountable for the suffering they have caused.
And their patients were losing patience.I get the impression they are waking up to a new reality.
They seem to be keen to say the right things, maybe they were losing patients?
They were handed a copy, but I don't expect it to have much impact. The problems surrounding PACE is of a political nature; being in the right facts-wise is not enough.I'm interested in whether this issue of JHP impacts on whether NICE take criticisms of PACE seriously
They were handed a copy, but I don't expect it to have much impact. The problems surrounding PACE is of a political nature; being in the right facts-wise is not enough.
Probably not. Their response to Tuller promotes the view that ME patients are dangerous militants, which only really makes sense if they also claim that ME is a psychological disorder which somehow makes ME patients more dangerous than other patients.I'm wndering if objections to PACE are gaining enough weight yet for NICE to have to be seen to take them seriously, it's a bit more public now
I left a few years ago...I get the impression they are waking up to a new reality.
They seem to be keen to say the right things, maybe they were losing patients?
Join up and leave again. They don't seem to have listened the first time.I left a few years ago...
Probably not. Their response to Tuller promotes the view that ME patients are dangerous militants, which only really makes sense if they also claim that ME is a psychological disorder which somehow makes ME patients more dangerous than other patients.
Whoever is dealing with ME in NICE is completely in the psychosocial camp, for whatever reason. I suspect it's financial in this case, rather than particularly dogmatic, but the outcome is the same for us. NICE will only change how it treats ME and ME patients when NICE is forced to change.