Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
603,076 Wow, it really shows just how much interest there is in this disease! If only our governments would take heed.
Everyone should send it to their relevant elected officials.
In just over a month, my TED talk has been translated into 18 languages and has been viewed over 890,000 times. This has been thanks in large part to how much you have shared and spread this talk and its message about the reality of Myalgic Encephalomyelitis (ME).
Now I need your help. We want to reach 1 million views for the #MillionsMissing!
Here are three ways to help:
1) Share on social media
Go to the TED page and use their social sharing buttons to share the talk on Facebook and Twitter. Use the hashtag #millionsmissing
2) Email the talk to 10 people you know
Share the talk with a friend, a loved one, or a family member so they can better understand your experience. Or share it with someone you know grappling with another chronic illness who might relate.
3) Use the talk as a way to start a conversation with someone in your community
Send it to a doctor, nurse, school teacher, or community or religious leader you know personally, for example. A deeper understanding might help them to better serve adults and young people living with ME and other invisible or chronic illnesses.
Thank you as ever for your support and your activism! Together, I believe we will achieve full recognition of this disease and someday soon, find a cure.
Yours,
Jen
TED Talk has been released. and it's great.
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
Now at total views of 1,214,648, and also now has 26 subtitle languages, which I found impressive.
It's really great, isn't it?!
Jen Brea is a member of the forums here.
She's also made a documentary film called Unrest, which can be found internationally on Netflix, Prime Video, iTunes, Google Play. Very very highly recommend it.