CFS_for_19_years
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Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome:
An IOM Report on Redefining an Illness
Ellen Wright Clayton, MD, JD
Viewpoint March 17, 2015
http://jama.jamanetwork.com/article.aspx?articleID=2118591
(Journal of the American Medical Association)
There are many good paragraphs in this article. I'd copy and paste the whole thing if it weren't for copyright issues.
An IOM Report on Redefining an Illness
Ellen Wright Clayton, MD, JD
Viewpoint March 17, 2015
http://jama.jamanetwork.com/article.aspx?articleID=2118591
(Journal of the American Medical Association)
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multisystem and often long-lasting disorder, with manifestations that can cause substantial morbidity and can severely impair patients’ health and well-being. It is estimated that between 836 000 and 2.5 million individuals are affected in the United States.1,2 Patients with ME/CFS are typically unable to perform their normal activities, and as many as one-fourth are homebound or bedridden, sometimes for extended periods.3 As a result, the personal and social effects and ramifications of this disease are enormous.
The committee concluded that a new name—systemic exertion intolerance disease—was warranted to capture the essence of this disorder until causation and pathophysiology are better delineated by research. Although patients differ in their triggers and manifestations, the salient feature of this disorder is that any kind of exertion—physical, cognitive, emotional—can adversely affect these patients in many aspects of their biological function and in their lives, frequently severely and often for a prolonged period. “Myalgic encephalomyelitis,” for which many people who provided input to the IOM study through testimony and public comments advocated, simply does not describe this disorder. “Chronic fatigue syndrome” fails to depict the complexity of this disease and is also unacceptable to many patients and their advocates, who reported that this term leads clinicians and others to belittle or even dismiss their disease. The new name, which should be accompanied by a new International Statistical Classification of Diseases and Related Health Problems, Tenth Revision (ICD-10) code, also distinguishes this definition from previous ones. Thus, patients who meet these new criteria should be diagnosed with systemic exertion intolerance disease even if they also meet criteria for earlier variants of ME/CFS.
There are many good paragraphs in this article. I'd copy and paste the whole thing if it weren't for copyright issues.
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