minkeygirl
But I Look So Good.
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I am talking about getting Citokine profile, lymphocite subsets, NK cell test Activity number, Tcells, B cells..... All immunologic profile and known viral/ bacterial activations in CFS. Tilt table test for Dysautonomia, Sleep study.....
I hear a lot of people that went to a "CFS Dr" and didn't even geta NK cell test!!!!
So I do understand the furstrstion, you have to do homework and the kind of tests/treatment that doctor offers.
I am talking about getting Citokine profile, lymphocite subsets, NK cell test Activity number, Tcells, B cells..... All immunologic profile and known viral/ bacterial activations in CFS. Tilt table test for Dysautonomia, Sleep study.....
I hear a lot of people that went to a "CFS Dr" and didn't even geta NK cell test!!!!
So I do understand the furstrstion, you have to do homework and the kind of tests/treatment that doctor offers.
I am reading his book "from fatigued to fantastic,. He says that he can diagnose CFS with one question. How's your sleep?
So if you sleep okay you don't have CFS?
Bear in mind as I say this that I've got some serious anger going so I'm just speaking my general annoyance at people saying everyone should see a CFS specialist. Like it's so easy.
We all know:
1. They are few and far between
2. They have waiting lists.
3. People can't get to them
4. People can't pay for them if they could get to them
Helped me with insomnia also, possibly by normalizing neurotransmitters and hormones, at least somewhat. It made me alert but less stressed, at least in beginning@ahmo I just started methylation. I'm in the agitation, frustration and anger phase. It would be great if it helped that and the insomnia. I've had sleep problems as far back as I can remember.