IVIG and Working

Gingergrrl

Senior Member
Messages
14,056
Likes
41,950
Interesting. IVIG seems really intense, would it be better to get it at home than in hospital because of the time required if doing a careful/slow infusion to prevent reaction?
It truly depends on your individual situation. At the time I started IVIG, I was considered too high of an anaphylaxis risk to do IVIG at home. I did it at an outpatient infusion center that is connected to the hospital where my mast cell doctor works. If I'd had anaphylaxis from the IVIG (which I never did in two years but in the beginning we were extremely careful), I would have been 5 min away if I needed to be transported to the Emergency Room.
 
Last edited:

Learner1

Administrator
Messages
3,614
Likes
6,403
Location
Pacific Northwest
Interesting. IVIG seems really intense, would it be better to get it at home than in hospital because of the time required if doing a careful/slow infusion to prevent reaction?
I just had an infusion at my house that lasted from 9:30am to 6pm. I do it at a much slower rate than most people, and am given Solumedrol and Benadryl (and an NSAID if I need it) and I have an Epipen and an "anaphylaxis kit" and am treated by specially trained, experienced nurses who watch me carefully and take vitals every 15-20 minutes.

But I am at home, where I can go outside, sleep in my own bed, eat whatever I want whenever I want, throw a load of clothes into the dryer, watch TV, etc. Beats a stuffy hospital...