ASSSEM DAY WITH COLLABORATION IrsiCaixaON THE RESEARCH Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
ASSSEM launches campaign to fund research into new diagnostic tools Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
- In order to further advance scientific research Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), theAssociation of Health Service of Myalgic Encephalomyelitis(ASSSEM) launches a campaign to boost Verkami micropatronage in draft Research Institute for AIDS Research IrsiCaixa that aims to define new diagnostic tools for this disease.
- ASSSEM organizes a conference for Monday in Barcelona on research of ME / CFS, in which the results of a comparative biomarker made by patients will be presented.
- This comparison, made by people with ME / CFS, supports immune dysfunction and two potential biomarkers in patients suffering from the disease.
- On the day the investigator IGTP in IrsiCaixa Julia White will present the project to be financed campaign Verkami and talk about the current state of research of ME / CFS.
Barcelona, March 14, 2014 -. Around 200 patients suffering from Myalgic Encephalomyelitis (ME), also called Chronic Fatigue Syndrome (CFS), participated in a
comparative biomarker in ME / CFS, assuming the cost of the analysis. This comparison has corroborated marked immunological abnormalities and two potential biomarkers in a high percentage of people affected by ME / CFS. The comparison has been promoted by
the Association of Health ServiceMyalgic Encephalomyelitis (ASSSEM) , which will release the results
this Monday, March 17, in a day in the
Casa del Mar de Barcelona (1-13 Albareda street) at 17.00 .
Comparative biomarker that has conducted
ASSSEM was based in part on the results of the
initial study led by the Research Institute IrsiCaixa AIDS , published in 2013 inMagazine
Journalof Translational Medicine , which had a large international echo. The study, coordinated by the researcher in IGTP
IrsiCaixa Julia White, identified changes on 8 molecules of the immune system in 12 patients with CFS, associated with poorer immune function, which could be used to improve the diagnosis of this disease.
Following the publication of this work,
ASSSEM proposed
IrsiCaixainclude more patients in the study, but the lack of public funding to cover the high cost of the project and the lack of patients diagnosed from specialized units became unaffordable this extension. Fearing that this development did not have clinical impact,
ASSSEM decided to bear the costs, with the collaboration of those affected, to make a comparison of biomarkers.According to
Jose Luis Rivas, president of ASSSEM , preliminary results "reaffirm that the investigation of the immune system is the way to advance the knowledge of this disease, to define a diagnosis and develop a treatment."
Crowdfunding campaign to finance the research project IrsiCaixa
"We need allies in the field of basic research, as IrsiCaixa to continue our research into disease and its relation to the immune system," says Rivas.
Therefore, ASSSEM Verkami has decided to use to start a campaign micro-grants to finance the research project
IrsiCaixa "
Characterization of regulatory T cells in patients with Myalgic Encefalomilitis / Chronic Fatigue Syndrome . "
They need to raise 29,000 euros, which cover the budget of this project. campaign
will begin on Monday March 17 at Verkami and last 40 days, entitled
"Investigation of new diagnostic tools Myalgic Encephalomyelitis / Chronic Fatigue Syndrome" . ASSSEM calls for solidarity citizens to work with a donation through Verkami or by crediting the account ASSSEM: BBVA 0182 1413 69 0201553881, indicating the concept name, surname and "Donation research."
During the day on Monday in Barcelona, ASSSEM present campaign micro-grants and the various options for collaborating. Meanwhile, investigator
IGTP in
IrsiCaixa Julia White will present the research project will be carried out if the campaign is successful, and continues the
published last year by the same researchers .
Regulatory T cells are a key element in the immune system, controlling both the response to pathogens and autoimmune responses. "Because the control of pathogens and autoimmune disorders are altered in patients with ME / CFS, we believe that the study of these cells can provide relevant for understanding the involvement of the immune system in this disease data," says Julia White. The goal of researchers is in addition to
defining new diagnostic tools, better understand the causes of Chronic Fatigue Syndrome and identify potential therapeutic targets.
The study will last for one year and be done with samples already stored in the laboratory
IrsiCaixa , so it will not mean any discomfort to those affected.
The Central Sensitivity Syndromes (SSC)
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) is part of the so-called
Central Sensitivity Syndromes (SSC), along with FibromyalgiaMultiple Chemical Sensitivity and the Electrohipersensibilidad.Arediseases with
estimated between 1.5% and 2% of the population incidence , and which can occur simultaneously in some patients.
Some of the scientific literature on the SSC are based on the assumption that share a mechanism biophysiological
neuroinmunoendocrina dysregulation , Intricate, yet largely unknown, justifying the underlying cause of central sensitization.
Neuroinmunoendocrina Because the nature of these diseases is not being recognized in our country, studies like this in basic research are essential for those affected to be able to get proper medical care, financial assistance and recognition that today still do not have. Currently, those affected, in a high percentage suffer serious and disabling disease extent, take more than five years on average to be diagnosed, partly because of medical ignorance. Then they are "parked" in primary care or in units where they are treated without the proper knowledge, ignoring the true nature of the disease, its severity and medications which may even be harmful. Not being recognized as disabling, many sick, defenseless against doctors and courts of justice, are also at risk of social exclusion, further aggravating their condition.