Ive noticed lately there is a heap of completely illogical behaviour of late going on which seems to be trying to encourage others to do the same. (with some thou I dont agree with what is going on in their thoughts, I can see how they've come to their reasoning so this post isnt really about them but there are some others, its going far beyond this and just arent normal behavioural responses).
Maybe I myself are crazy for even thinking this but Im seeing so much irrational behaviour among those with ME/CFS of late, that Ive started to wonder if there is some conspiratory going on which wants to make us appear crazy?
Is it possible that there are people out there who actually want us to look bad? Who may infiltrate places and pose as one of us to do that and try to stir up trouble for not just this community but the ME/CFS community as a whole?
Yeah now Im sounding illogical myself
I believe there are numerous posters on the forums who are not working in the patient communities best interest. I think they post daily and probably even on this thread.
I don't know if they are trying to make the patient community look bad necessarily, and often act just like anybody else!
I think they are mainly confusing patients/researchers when a particular topic comes up that conflicts with their idea of what the "official message" should be.
They are probably working for the MRC, CAA, CDC, or Big Pharma, or the insurance companies to support that official message.
I think the "chronic fatigue" message is one they have carefully crafted for about 20+years (starting in the Oslers web days) with Reeves, Wesseley, and the piles of research making it seem as though CFS is a psychiatric disease mainly and still has no known biological cause to do legitimate research on.
This allows them to do many things, one of which is to avoid chronic disability payments.
I can't see why, after 20 years they would want to change their minds all of a sudden, and "undo" everything they worked so hard to create. Therefore, it is better to have a a number of forum posters present to maintain that carefully crafted message.
If they really wanted to do well, they would come out of the closet and give a $10 million dollar grant to somebody like Rich Van K and let him organize a real research project to help us immediately. Instead they have multi million dollar remodels in the CDC complete with saunas, and TV studios....?
It's called plausible deniability (The same old crap). Maybe a real disease, but mostly psychological fixed with CBT or GET, No good testing, no good treatments, no good vitamins, no good drugs. No good advocacy organizations, no good research organizations to fund,(wait they just destroyed the WPI!) On and On and On... Worse yet, we are going to take away your supplements with codex alimentarius!