J.G
Senior Member
- Messages
- 162
Only a fellow pwME could follow up the words "objective evidence of brain damage" with a "Yippee!"Like objective evidence of brain damage! Yippee!
Only a fellow pwME could follow up the words "objective evidence of brain damage" with a "Yippee!"Like objective evidence of brain damage! Yippee!
Oh I fully embrace the irony!Only a fellow pwME could follow up the words "objective evidence of brain damage" with a "Yippee!"
Taking a break from it for a certain length of time and restarting it could help, but probably need to keep cycling on and off.
I get your point, but in a thread to where someone is looking for hope, why say this?I had to chuckle when I read this. With all due respect, "treatment 3-5 years away" has been the cliché prediction for this disease ever since ME/CFS was first identified decades ago. 3-5 years is an appealing time-frame because it doesn't sound like "decades" yet it gives plenty of time for stuff to happen.
And yet, the "3-5 year" time-frame never comes true; it just constantly slips into the future.
Well, Whitney did say " happy cure year this year" . When I asked him if he meant it was a hopeful pun or a potential reality, he replied " both"I get your point, but in a thread to where someone is looking for hope, why say this?
Well, Whitney did say " happy cure year this year" . When I asked him if he meant it was a hopeful pun or a potential reality, he replied " both"
Nice one! But unfortunately, copyright is ubiquitous so in Germany, it would still be a copyright infringement if he doesn't agree.Martin, if we pull our resources, we could perhaps make a compelling “fair use” argument under Section 107 of the Copyright Act
Yeah but only with these Aha treatments that only tackle the symptomsIt's certainly worth trying, but my experience with ME is that treatments might work well for the first few doses, and then they stop working and never work again.
I had to chuckle when I read this. With all due respect, "treatment 3-5 years away" has been the cliché prediction for this disease ever since ME/CFS was first identified decades ago. 3-5 years is an appealing time-frame because it doesn't sound like "decades" yet it gives plenty of time for stuff to happen.
And yet, the "3-5 year" time-frame never comes true; it just constantly slips into the future.
Jarred Younger did an excellent talk at the overall disappointing IACFS/ME
Not that I would be aware of@Martin aka paused||M.E. Hi Martin, Jarred is brilliant but I haven't seen him give a talk in years and would love to see this talk, or get a transcript. Is it available somewhere online?
HI Ben Smith, are you able to clarify a bit what you mean. Someone somewhere posted that trying out different medications on the cells did not work--but I don't have info. If there is any recent reliable news, please post. We just don't seem to know what is going on at OMF. Except the Abilify project with Dr. Bonilla. Thanks in Advancethat isn’t true anymore last i heard.
Ben Smith, are you able to clarify a bit what you mean. Someone somewhere posted that trying out different medications on the cells did not work--but I don't have info. If there is any recent reliable news, please post. We just don't seem to know what is going on at OMF. Except the Abilify project with Dr. Bonilla. Thanks in Advance
Today he said it was probably an interaction with another drugI read somewhere that he had an adverse reaction to some new medication (it may have been Janet Defoe's post on here) So assumed this new medication was a reference to progress this year. I think omf are keeping drug names secret so people who like to experiment don't to ensure they don't harm themselves
Maraviroc + statins seem to be promising for LCbudesonide, fluvoxamine, etc